Update on neuologist visit

[GrannyJo6]

I saw my neurologist this morning really expecting to see something exciting on the MRI! Not so much! Nada, nothing! He showed me where he thought there should be something, but conceded that perhaps they are too small to be picked up. Bummer! But, I don't have to change medication, so that's a good thing. He was pleased with my progress. Told him I'd been practicing at home  - the heel to toe walk, walking quickly down the hall, and just plain going for walks. My right eye still has a little nystagmus, but not nearly as bad. We talked about going back to work and I told him the fatigue is the main factor right now. He will see me in two months and reassess. I did get a form for a temporary disabled parking permit. Talked about driving. Says he isn't the one to say. Maybe not yet, but I willl know when I am ready. So, I guess I just need to be patient. I'm not sure I was expecting the symptoms to last like they have, but I know no two cases are ever the same. This is the path I am on, so I can accept it and get on with life or be frustrated and bitter. I choose to remain positive, knowing my life is in the hands of Someone much more wise than me! About time for sleep...again! Hooray!

[Blankney94]

Argh I've had that nystagmus - it's horrible isn't it!  I couldn't read or watch TV properly and it was just exhausting.  I had MS type symptoms for a period of six weeks - ataxia, vertigo and nystagmus.  Nothing showed up on my MRI scan either.  

Have you had a lumbar punch test?  Mine came up as oligoclonal banding protein positive.  

You sound really positive - well done.  Hope you get well soon!

[rendean]

Hi GrannyJo,

It is disappointing when you go to appointment expecting one thing and then walking out the door with a totally different assessment than you thought.

The good news is your neuro is pleased with your progress and no need to change your meds.

Sounds like you have a positive attitude about the whole situation which will serve you well as you live with this disease. Patience is always hard when one is waiting for a return to "the good old days" but I think you can pull this off as you are confident in yourself and your neuro.

Thanks for giving us an update!

Best wishes,
Ren