Hi guys and dolls. New issue popping up

[maxthecat43]

Until last year,  my symptoms were left side.  Then last year I had a very short relapse that also involved my right side.  It was only a couple of weeks long, then back to my version of normal.  

For the last 10 or 11 days only old symptoms reactivated,  until today.   Extreme right leg heaviness and drop foot.  I already have drop foot on the left side, and have worn a brace for three or four years.   I recently moved to a place with less than stellar medical care (and no ms specialists).  The new neurologist thinks I can only have MS weakness one side, not both.  (Even tthough I've likely had this since 1996-7  or so.)  The specialist in Seattle didn't doubt bilateral involvement could eventually happen.  

Unfortunately,  even though I had a 3T MRI scheduled for tomorrow,  I can't get it.  I just found out that I have a $300 copay.  It's just not possible.   Maybe it doesn't really matter in the long run.  Because I have Medicare, I can't get dmd's anyway.   So, I guess it's better not to know...

[maxthecat43]

I guess he changed his mind...  Now he wants me on a  dmd.  But that's impossible, I'm finding out.  There don't seem to be any programs for people on Medicare.  with my new Medicare product, I can't even get steroids!  (Well, I could if I could afford $350 per day of the infusion - in cash.)

I'm still frustrated, but there's nothing to be done about it.

(((Hugs and kisses to you too!)))

[supermum_ms]

Hey babe,

Um is this new neuro saying you can't have MS now.......because MS would NEVER EVER additionally develop symptoms in the opposite side to where it originally started in? Hmmmmm if so i kinda think MS missed getting that particular memo!

Your right leg has been carrying the load for years now, it's not all that surprising for things to start going wrong there too, at the very least i think you should see a physio and see what's what....

I'm to unsure about your health system to really comment about costs and what not, it's mind boggling to me. I wonder if it might help, if you contact your Seattle neuro and ask if he could recommend someone who could take over your care, who's in your new state?

Not surprising your frustrated............HUGS!

Hugs and kisses babe
  

[maxthecat43]

I wish there was a way to edit.

Sorry for the rant.  I'm just really frustrated.   Not so much with terrible insurance (I've developed a real phobia of small places) or even substandard medical care.  I think I'm more frustrated because I didn't think my disease was still inflammatory.