PAIN AND MS

[young at heart]

I DON'T REMEMBER IF WE HAVE DISCUSSED THIS TOPIC OR NOT . JUST OUT OF CURIOUSITY , HOW MANY HERE HAVE PAIN WITH YOUR MS OR THE ONES NOT DIAGNOSED?

MANY NEURO'S DISMISS PAIN WITH MS , EVEN THE ONES UNDIAGNOSED.

WE ALL KNOW THAT MS CAUSES NEUROPATHIC PAIN,PAIN IN THE LOW BACK,OPTICAL NEURITIS CAUSES PAIN WHEN MOVING THE EYES AND SO FORTH.

I'M FORTUNATE THAT MY NEURO BELEIVES IN PAIN WITH MS,BUT I ALSO HAVE AA (ADHESIVE ARACHNOIDITIS)

MY NEURO HAD ME ON OXYCODONE 10/325 I THINK AND HAS CHANGED IT TO METHADONE.WHICH I DON'T KNOW HOW I FEEL ABOUT IT.MY WHOLE SYSTEM IS WONKY RIGHT NOW.DON'T KNOW IF ITS THE PAIN MED OR THE SINUS INFECTION.

HOPING OTHERS WILL SHARE THEIR STORIES OF PAIN AND HOW YOUR DRS.TREAT IT.I THINK IT WILL HELP MANY HERE.

T-LYNN

[MCBCON]

any neuro who dismisses pain from/with MS should be hung and shot for torchering their patients.

[young at heart]

I POSTED THIS QUESTION SO WE ALL CAN SEE THAT PAIN GOES HAND IN HAND

WITH MS,EVEN FOR THE ONES UNDX'D.

THERE'S MANY FORMS OF PAIN AND IT SEEMS AS IF MANY DRS. AND NEURO'S

DISMISS IT.

T-LYNN

[Momzilla]

Hi, T~

I THINK ESS HAS THE RIGHT IDEA ASKING WHO "DOESN'T HAVE PAIN!"

I, TOO, HAVE THE TINGLING, BURNING PARASTHESIA PAIN.  BUT I ALSO HAVE CRAMPY MUSCLE PAIN EVERY SINGLE STINKING DAY, MOSTLY IN THE BACKS OF MY LEGS.  MY HAMSTRINGS AND CALVES.  IF I'VE BEEN REALLY ACTIVE, MY MUSCLES SORT OF VIBRATE WITH PAIN WHILE I TRY TO FALL ASLEEP.  TRY AND TRY...

AND, LIKE ESS, I HAVE THE PAIN UP INTO MY BUTT!!  AREN'T WE CHEEKY!

FEEL BETTER, EVERYONE!!!

HANG IN THERE, T.  

Z*

[doublevision1]

My pain has been mainly in both my forearms - paresthesia or dysthesia, I'm not really sure what it's called.  It is a burning, hyper-sensitive sensation on the skin.  It started 6 months ago with my first major flare.  I started Neurontin recently and for a few days the pain in both arms really diminished, then it returned in my left arm and spread to my left hand, and then I developed overall left side numbness from my shoulder to my foot.  I would describe my arm and hand as painful and the rest of my left side as numb.  I am trying not to use my left hand as most things I touch feel like razor blades.  Even the elastic band on my underwear feels sharp!  I currently have a compression bandage wrapped around my arm which relieves the burning/hypersensitivity.  I see my GP on Friday and will ask about increasing the Neurontin.  HATE the idea of all these meds but not sure what else to do.

In one of my neuro reports, my Lhermitte's Sign was described as 'neuropathic pain.'  That suprised me a bit, because I didn't describe it to the doc as painful, because it wasn't.  Just a zapping, shock-like sensation.  I know some people here have it quite bad and would describe it as painful; fortunately that wasn't the case for me.  Just kind of surprised me that the doc described it in this way.  The pain I am having in my arm and hand at the moment is far worse.

db1

[doni54]

I AM UNDX AND PAIN IS MY DAILY COMPANION.  WHILE DOING ALL THIS PACKING AND MOVING IT HAS GOTTEN EXTREMELY BAD.

ELAINE, LIKE CRAIG, THE SOLES OF MY FEET FEEL LIKE I AM WALKING ON HOT COALS, THE PAIN IS SO BAD.  LAST THURSDAY WHILE MOVING BOXES I ACTUALLY HURT SO BAD I JUST SAT DOWN AND HAD MYSELF A GOOD PITY CRY.  DIDN'T HELP THE PAIN....JUST STOPPED UP MY NOSE....HA..HA...

OF COURSE MY PAIN IS ALWAYS WORSE IF I GET TOO HOT OR TOO TIRED.  SOMETIMES IT IS FROM THE SPASMS, BUT MANY TIMES IT IS JUST THAT HORRIBLE UNRELENTING PAIN.  

FEET, LEGS, BACK, ARMS, NECK..... I GUESS I SHOULD JUST SAY "EVERYWHERE"......

WISHING ALL OF YOU A LOWER PAIN LEVEL, AT LEAST FOR TODAY.

DONI

[young at heart]

SWEETIE,

DIDN'T MEAN TO LEAVE YOU OUT,YOU MUST HAVE BEEN POSTING WHILE I WAS TYPING MINE.

I AM SO SORRY TO HEAR OF ALL YOUR PAIN,I CAN UNDERSTAND YOUR FEELINGS TOWARD THE OXYCODONE,IT WORKED WELL FOR ME AT FIRST,I HATE THE METHADONE,I DON'T THINK I'M HAVING ANY SIDE EFFECTS FROM IT,BUT ITS REALLY NOT HELPING MY PAIN,BUT IT HAS TO BUILD UP INTO YOUR SYSTEM.

PLUS I HAVE A HEADACHE AND RUNNING A 103 TEMP. , SO THIS IS NOT HELPING.

I'M SAD THAT YOUR DRS ARE SO DISMISSIVE,WHAT AN IDIOT,MAYBE THE RECEPTIOIST NEEDS A VISUAL COLOR CHART OF A PHONE TO FIND IT.

WISHING YOU WELL.

T