Looney bin....admit one.

[Jw534]

A short history. Almost a year ago I started with rt sided weakness and numbness. I've had eye issues, numb tongue (only half), tingling, prickly sensation, heat and cold intolerance, extreme fatigue and lots of other lovely things.

I am on my second Neurologist about to be third and have had every test there is. The only ones that have been abnormal were the physical exam which were hyper reflexes on rt side mostly and loss of sensation on rt side. I just had an MRI with contrast last week and nothing!

I woke up this morning with my rt arm and hand significantly weaker. I'm at a loss as to where to go from here. My current Neuro suspects ms but doesn't know what to do from here. I'm a fire fighter/EMT and this is effecting my performance.

I guess I just needed to vent. Thanks for listening and I hope you are all as well as you can be.

[maxthecat43]

Unfortunately, there isn't much any doctor can do about the damage that has already been done. In my case, early attacks (20 years ago) resolved completely.  I didn't have any permanent effects until the last five years or so.  So maybe yours will resolve.  I hope so.

You don't really have to change neuros.  You can go to another one specifically for a second opinion.  

You don't have to have O-bands in your spinal fluid to have MS.

If your current neurologist is at a loss too, it would be good to see if another one could help.  Then you can make a decision about who to continue seeing afterward.

Best Wishes,
Tammy

[Jw534]

The MRI was both brain and cervical spine.  My current Neuro is not an MS specialist. The ms specialist in that office initially didn't want to see me until I had a lumbar puncture. My lumbar puncture was normal.

I really like my Neuro and hate to change again. I don't know if changing will help due to the fact that none of my tests are showing anything. I'm just at a loss at the moment.

[kwarendorf]

Hi JW-

Unfortunately frustration is often a big part of diagnosing neurological disease. If your current neuro does suspect MS, but is unsure of how to proceed, I would proceed to a new neurologist. Is he or she an MS specialist?

Was the MRI of your brain, or did you also have an MRI of your cervical and thoracic spine? I know it seems endless/pointless, but you really should press forward :-)

Kyle