Hi JW-
Unfortunately frustration is often a big part of diagnosing neurological disease. If your current neuro does suspect MS, but is unsure of how to proceed, I would proceed to a new neurologist. Is he or she an MS specialist?
Was the MRI of your brain, or did you also have an MRI of your cervical and thoracic spine? I know it seems endless/pointless, but you really should press forward :-)
Kyle
The MRI was both brain and cervical spine. My current Neuro is not an MS specialist. The ms specialist in that office initially didn't want to see me until I had a lumbar puncture. My lumbar puncture was normal.
I really like my Neuro and hate to change again. I don't know if changing will help due to the fact that none of my tests are showing anything. I'm just at a loss at the moment.
Unfortunately, there isn't much any doctor can do about the damage that has already been done. In my case, early attacks (20 years ago) resolved completely. I didn't have any permanent effects until the last five years or so. So maybe yours will resolve. I hope so.
You don't really have to change neuros. You can go to another one specifically for a second opinion.
You don't have to have O-bands in your spinal fluid to have MS.
If your current neurologist is at a loss too, it would be good to see if another one could help. Then you can make a decision about who to continue seeing afterward.
Best Wishes,
Tammy