Baffled by symptoms

[emsgma]

Hi, I am new and I'm nervous.  I have had some weird symptoms and the drs I keep seeing are telling me its my depression and stress, that my symptoms don't make sense.  Last Oct. - Dec. I started having dizzy spells, felt like I was moving when I wasn't, had a sense that I was going to fall, had trouble with perception, had trouble going up stairs like I wasn't sure if I was stepping in the right fashion, felt like falling when going down stairs, muscle fatigue, episodes of extreme fatigue, have had memory problems, recalling words and completing sentences...My psychiatrist knew about all the symptoms and my PD knew.  He said it was stress and medication related.  Psych didn't feel it was either.  I saw the neurologist I've been seeing for my headaches, he blew me off and said none of my symptoms made any sense.  I had an EMG for tingling which was neg.  So, I wound up having some neuropsych testing which proved I have significant deficits in memory recall and poor attention and concentration.  She felt I should see a neurologist.  She talked to my neurologist and he doesn't need/want to see me.   Starting in May I've had episodes of being very dizzy, things moving, double vision and perceived double vision.  Hot flashes, night sweats, get sweaty when I eat hot food, not spicy hot but temp. hot so I eat room temp food.  GYN tests neg. for perimenopause.  MRI that opthamologist ordered showed minimal white matter changes which cannot exclude small vessel ischemic disease and a subarachnoid cyst. Nothing related to lesions were mentioned.  I had a spell of confusion, slurred speech and inability to write legibly one day at work and the ER dr. told me I take too many medicines.    The opthamologist gave me the thumbs up so I've made an appt with an ear dr. to see if it could be something vestibular causing all this.  I am a nurse so I have been my own advocate but I'm at a point where I'm ready to throw in the towel seems how they all think I'm either nuts or overmedicated.  I have a referral for a neurologist at the closest major medical center, Marshfield WI but I'm afraid I'll go through all the trouble, going out of state, making a fuss to be told its really nothing and making a fool and nuisense of myself.  Can MS symptoms be brief and vague and so scattered?  I don't have any one symtom for days or anything and sometimes it can be one symptom today and then not  another until next week.  Please guide me.

[emsgma]

I forgot a few things so, By the way, I have had episodes of my eyeballs burning and a few where my eyeballs hurt.  That was way weird.

[Lulu54]

Hi and welcome.  I hope you are nervous about everything going on with your body and not nervous about being here.  We really are a friendly group and welcome you with open arms

Your symptoms may not make sense to the doctors but that doesn't make them not real.  You know your own body  and if you know that something is not right don't give up on finding the answers.

There are times when its appropriate to worry about making a fool of ourselves, but when it comes to our health that isn't one of them.  As a nurse you have probably seen first hand the damage inflicted on patients who have been ignored and told their problems were in their heads when it turned out to be a very real health issue.   It happens all the time, and especially to women.

So perhaps you don't have MS  - but someone is listening to you and gave you the referral to the MS neuro.  Go ahead and see the doctor if you can.  

Stay in touch and feel free to come back and ask questions - this is a very smart community willing to share their knowledge with everyone.

my best,
Lulu

[Wobbly]

welcome to the forum, sounds like you have stuff to get looked at and hope you find out some answers soon.. I'm not Dx yet but wanted to welcome you and let you know to check out the Health Pages... link on the top right side of page..

take care
wobbly
undx