Please help. I am so afraid.

Question

Please help!!! I have them within the subcortical white matter of the right frontal lobe with additional tiny focus also possibly present within the subcortical white matter of the right centrum semi ovale. Aprox, 5 to 6 larger foci of FLAIR hyperintensity are demonstrated within the white matter posterior to he bodies of the lateral ventricles bilaterally right more than left? Also in my MRI result, information states abnormal hypointensity to the calvarial osseous marrow signal. I also have Chiari Malformation (this i already know much about). I am just not sure what the other indications mean??? I am only 24 years old! How could this happen? I am young! MY symptoms include pins and needle tingling on my left hand only. I have two baker's cyst behind my knees. I have swollen ankles. I have stomach like itching deep under skin (biopsy of stomach showed helicop, plori). I have tightness in my head, neck and shoulders. My neuo says not only do i have an inactive chiari 1 but i have Fibromyalgia. How come she ha never mentioned the other findings, like the lesions. My neurosurgeon either! He suppose to be the best. I am afraid of everything. I am so scared. I want children. I want a life with my fiance. I am only 24. I feel weak only when i am not active.

melsbells2 · Answer

Thank you so much for your help. I really appreciate it. I am very thankful. I will see my Neuro on the 4th. Most of my aches are pins and needles in my stomach and my left hand...along with body and head TIGHTNESS. Whenever I crack my own back or neck, i feel much better. The tingling tickles in my stomach are getting pretty bad. I am beginning to think that it is coming from the spine. Thanks again so much for what you do.

Quixotic1 · Answer

All the spaces in the head and spinal canal that don't have brain in them are filled with fluid.  The ventricles are supposed to have fluid in them.  The lesions that are near the ventricles will not cause the ventricles to swell.  

No, lesions like these do not cause strokes.  Some might have been the result of tiny ministrokes, That is why when someone has neurologic symptoms and lesions are seen, the workup for things that cause lesions  (like MS, Lyme, Lupus, etc).

96% of all people have had the Epstein Bair Virus.  You are in good company.

The "abnormal hypointensity to the calvarial osseous marrow signal" sounds benign like a small bony cyst.  The calavarium is the skullbone.

Please ask your neuro to explain your lesions in light of your neuro symptoms.  The ones next to the ventricles are not likely caused by age.

Quix

melsbells2 · Answer

What i mean is, do these lesions by the venricles cause strokes? I mean this is a fear. I did have Epstein barr in the past. Also added on my MRI result:::::

 information states abnormal hypointensity to the calvarial osseous marrow signal.

melsbells2 · Answer

Hello! I am so sorry for sounding out of control. I am just very nervous. You see, if i were told that I have MS, then i know what to do....same for anything else. But my symptoms are all oh so strange. All of what i have mentioned is what I have. I ache from head to toe. My MRI results were two years ago and yet my Neuro has never mentioned this additional information. All she mentioned was ACM and spasms in my cervical spine. My cervical spine shows nothing else. I only have tingling...more like pinches, crawling sensations and tickles in my abdomen and my left hand. I alo get sleep paralysis when my muscles tight. I constantly want to crack my back or stretch. I feel at best when i am moving around. If i am inactive, my body begins to ache. I am really concerned about the lesions, not so much because of MS but for any ventricle swelling that may lead to a stroke or an aneuryusm. Fluid in the ventricles cause this? Thank you so much for what you do. It is great to hear from others. I a currently only on 75mg Lyrica and xalatan for my eyes. I can't understand why my neuro avoided such results.

Quixotic1 · Answer

Hi Mel, please try to take a deep breath and get a grip.  Nothing you have yet told us says that you won't be able to have a family and watch it and your grandchildren grow up.  

What are your doctors saying about these lesions in your brain?  Have they suggested MS?  

Your ACM I is inactive, so I assume that means it's not causing symptoms.  That would not be related to MS, neither would glaucoma, nor the Baker's cysts, nor the swollen ankles, nor the H. pylorii ulcer.

The only thing that suggests a problem "like" MS is the tingling and the MRI lesions IF they are not caused by the ACM.  This is something I don't know.

Now, a hyperintensity is a bright spot on the MRI.  FLAIR is a special technique that helps show lesions that are close to fluid, like the fluid in the ventricles.

Please read the article "How the MRI Shows Lesions in MS"

http://www.medhelp.org/health_pages/Multiple-Sclerosis/How-MRIs-Show-Lesions-in-MS/show/23?cid=36

That will explain a lot of this.

It sounds like you just found out about the lesions.  Is that right?

Why don't you tell us what has gone on?

And welcome to the forum.

Quix