Progressive....darn

[Mike_Shuswap]

So, I went to my yearly Neuro appt at the MS clinic. He figures my MS has slowly progressed. That's kind of what I've felt all along, so no real surprise there.

The good news is I no longer have to inject Rebif! I always felt like I was at least doing something to try and combat the effects of MS by taking Rebif, so I have mixed feelings about stopping this treatment.

I'm to continue with the Gabapentin and Detrol LA to deal with some of the symptoms. I didn't like the way I felt on Modafinil, so he rx'd Amantidine for me to try for fatigue.

He's scheduling an MRI for next summer and when I see him next the fall we'll decide what treatments to try.

Mike

[karryon55]

Hi Mike, I am very sorry to hear this news. I also don't know you but fell bad when I read your post. I hope that your progression is a very slow one. I can understand you have mixed feelings....after all you've been told something that you need to come to terms with in your own way.

Take good care of yourself..... Karry.

[Joiedecour]

Mike, don't know you, but I just read your post, your emotions ring out loud and clear, and I just wanted to say I'm sorry you're getting this news.
I hope you're getting support right now - you've got it here in this forum for starters. I think from what I remember of posts that there are others with progressive who are doing just fine. Take care.

[HVAC]

When I gave up Copaxone due to being told I had Progressive MS I felt very sad.

Alex