Quality of Life Test...

[johnniebear]

this is test to find  out about your quality of live with MS

this is called MSQOL54,

I had never heard of this test , however it's seems like MS nurse has asked me a few of these question.  Some of questions I really never thought of ,  I do regret the answers to some questions.



Good baseline  selt test you can take.

http://eventnjb.nationalmssociety.org/docs/HOM/MSQOL54_995.pdf

Everyone's MS is different & so will  eack person test results be .  Best of luck to you if you take the test .

.

Take care
Johnniebear

[Lulu54]

Basically, the higher the total number, the more QOL, supposedly.  It is a scale of 0-100, with 100 being the absolute highest number you can achieve.

For a complete explanation of the study , check out this google book

books.google.com/books?isbn=1888799358
in the search box enter MSQOL-54 and you will find a thorough review of the test instrument and what it means.

[Ufrustrated2]

interesting, i played it forward to our ms group.

[cali1892]

I don't understand how the scoring works?

[SarahL2491]

think I will pass on it, stay depressed enough don't need any more ammunition!

[JaneK1975]

Super interesting- and, yes, a bit of a reality check :/ Thanks for sharing.

[Lulu54]

NMSS asked me to use this survey with our swim participants - I actually had a person tell me it depressed her so much that she didn't want to even come to the swim group.  I felt bad for her.  

This test can be an unsettling  reality check if you have experienced major changes.

Whatever  you do, if you take the MSQOL54, discuss the problem areas with your medical team and see what changes can be made to improve your situation.\

best, L