Questions, anyone?

[Lulu54]

This Saturday I will be attending a 3 hour informational session with my MSologist, and his MS nurse.  He was more than willing the last time I went to one of his talks to answer our questions and I thought I would offer to do the same again this weekend.

so bring it on.... what question would you like answered?  Our first list was pretty extensive we might not have any ones left. LOL

You can read the first group at

http://www.medhelp.org/posts/Multiple-Sclerosis/If-you-could-ask-only-one--question/show/1501565?personal_page_id=865800

[rendean]

My question is the exact same question Mary (twopack ) phrased so eloquently . Anxious to see if you have an answer. Again , to reiterate what everyone else has said, Thank you  for taking the time to do this and pass our thanks on to your neuro as well.

Ren

[cheesymum]

Darn, I just saw this!  I had a question I would've loved answered.  Shoot!  Maybe I'll just post it and see if anyone has some opinions or knows the answer.  This is phenomenal of you and him to do this!

[Lulu54]

I do have answers for the majority of these questions but had a crazy day today and no time to assemble my notes into something that will make sense.  Yesterday will not be much better - take my word that I will get them posted by mid-week.

It was another good session.
Lu

[MissLauraI]

Thanks for the link and answer Lulu. That helps to understand better. I appreciate you taking the time to help!

[Lulu54]

Mary,  I'm still up -- should be asleep, but I'm not.  This is the same question I want to ask him.... if my mri's show no change, why are my symptoms getting worse?  You have just worded it a whole lot better!

BTW  he warned me via email that he is giving the same talk that I heard the last time.  I told him that's ok- I have MS and have already forgotten it!  LOL  I also warned him that the talk may be the same, but the questions will all be new.


Now I'm off to bed - got a big day tomorrow.  

[twopack]

So, in case you get back here (but I know you are sound asleep now) .....

Quite a few people here who are diagnosed with MS have shared that their MRIs have shown no increase in visible lesion load over the years.  This holds true even though exacerbations and symptoms continue to progress.  Is there something that explains this?  And then, how does the static MRI finding in known MS fit in with the norm of repeated MR Imaging to monitor disease progression and DMD effectiveness?

Thanks
Mary
(I knew I should have messaged this question to you a week or two ago!)