RRMS transision to SPMS

[WarKitten2008]

Hi All

I was wondering, as I have not heard alot about this question I am about to ask.
Has anyone here gone from RRMS to SPMS and if so would you mind sharing
your experience of symptoms and changes. Or how you knew that it was changing
course? ect..

I only ask, because I never seem to bounce back anymore always feel downhill
abit more each month.

It also may help others here with RRMS to better gague how they are
doing.
I hope this is not to personal of a thing to bring up? It  is just somthing that I havent
seen discussed here.    Any comments or experiences would be so welcome.

                                                                                 Warkitten 2008

[ccc142]

hi there, i was rrms for a long time, now one neurologist tells me it has gone on to progressive.  i found a new doctor and she says it is not in progressive yet and has recommended chemo, which i have no idea what that will entail, i guess i'll know soon enough!!!!

[WarKitten2008]

Hi There:

Yes this helps abit. Alot actually. I seem to be going threw somthing
similar. I have alot of symptoms getting worse, but have not seemed
to have any major flare up's that would require a vistit to the hospitial.

This is pretty much the reason, I was asking about the transition stage.

Thanks for the info Slightlybroken.    Chemo Sounds kinda scary.
I did not know that was one of the treatments. Guess I have some
learnning to do.        

Any other comments would be welcome......                 WarKitten 2008

[slightlybroken]

My mother's boss has RRMS that went into SPMS. She has been DX with MS for less than 10 years. She had symptoms for years that she ignored but finally, she went to the doctor and was DX.

According to my mother, she started to experience more symptoms and less relapses. Her MRI showed that she was having an increase in the lesions even though she was on medication. Her doctor thought that she must be going into SPMS.

She decided to try a chemo treatment to reset her bodies immune system.

Hope This Helps