I had asked this question once before, if anyone had experienced diarrhea on Rebif. And one member replied, that, yes, she had diarrhea & she was on Rebif, but wasn't sure if it was from the Rebif.
I developed severe diarrhea, 4 months after starting Rebif.
Now, I'd like to ask more about it.
I was diagnosed with Lymphocytic colitis, 12/17/2012.
I took 3, 3 mg. of Budesonide capsules a day(generic Entocort) for 6 weeks, with no reduction in the diarrhea.
So, then, my G.I. Doc reduced the Budesonide to 2, 3 mg. & added 3, 1.2 GM. Lialda tablets a day.
After 4 weeks on the meds, I still wasn't experiencing any reduction in the severe diarrhea.
So, in March, I took 4 weeks off of Rebif. By the middle of the 4th week, I was able to drink 2 cups of coffee a day, with Half & Half and even eat cake for my 39th wedding anniversary. (I ate cake for 4 days-no diarrhea)
I restarted the Rebif, the 1st week of April, and the diarrhea returned, after the 2nd injection.
I can't drink coffee, etc.
My MS Lifelines nurse came out, to see if I had enough fat to use the new Rebidose injector. I weigh 74#s, and the injector is set at 2, whereas I was set at 1 with the pen. And she said not one of her patients have had diarrhea while on Rebif.
My Medco pharmacist looked it up, and she said 16% of patients that use Rebif, have diarrhea.
So, I'd like some thoughts.
TIA
Sheila