Recent MRI

[Nellzer]

So I typed in hyperintensity into Google and it sent me here and from what I'm reading I'm starting to feel a little freaked out because  this is related to my 8 year old daughters MRI she has been having attacks of head pain and numbness and tingling on limbs I very worried for her because I do have MS and her episodes remind me exactly of my own attacks it makes me so sick to think about her living with this for the rest of her life is it possible for an right year old to have MS

[Nellzer]

I am in PA also I did open an account but I used a different name I understand the blocking part I did have the person blocked but they kept making fake account I didn't add her but some of my friends did and she started trouble with then but if she doesn't know I don't have an account then she won't feel it necessary to make accounts :) I would love to pull my daughter out of the school and homeschool her but my husband won't allow it and we checked into private school but none are very close and while we could afford it would be tight financially so we are at a dead lock on that lol I know I have considered getting a lawyer because of the extreme negligence of the school even as far a not providing bathrooms for the girls and having them use the bushes at cheerleading practice I caused a stir about it and the girls have a bathroom now but I have been on the blacklist ever since it is all very frustrating because my husband actually none of my family support any of my decisions and think I'm over reacting so ever decision I make is met with opposition from somewhere honesty the only support I have from anywhere is from the doctors that is one reason why I am glad I found this page

[HVAC]

My MS started before the age of two. I have lived a pretty normal life. I was not diagnosed until I was in my 40's. I knew I had Neurological problem but not what it was. I worked in construction and still do therapeuric riding every once and a while.

[PeninaD]

I guess I have assumed you are in the USA...if not, Canadian MS Society also has Pediatric Resources, sometimes shared with its USA cousin.  UK might be a bit weaker on Pediatric Resources at this time.  Australia has some specific to Pediatric MS.

[PeninaD]

I want you to know, our daughter goes to school in PA, but was hospitalized extensively in NYC.  The day after admission, a teacher from the NYC Dept of Education was in her room.  That is right, NYC has teachers assigned to some hospitals!  It was a bit dicey, with different curriculum, but they tried to keep her up on at least her core HS subjects.

Also, find out what you would need to do to get homebound instruction for your child, or on-line learning from the school district or your state.  You might also be able, when she is in school, to get the school district to provide PT/OT as required.

[PeninaD]

BTW, if you open a FB account, you can go into security and privacy settings to block certain people, or people in general from locating or contacting you, as well as who can see your posts.  As the PMSA group is a closed group, the administrator has to approve anyone that asks to join.

[PeninaD]

The school needs to know that YOU know that she has rights, and that under federal, and various state laws, they ARE required to provide accommodations to her.  The parents at the FB group have a lot of experience with these issues. Also, the NMSS has books specifically about this, both for the parent/student as well as for educators.  You can download them from NMSS, but when you contact them about pediatric MS, they will include a copy of each of these books in the package they send out.
If necessary, you can look up your state laws about educational services...very often you will also find links for lawyers that specialize in education law.  Let me tell you, schools tend to roll over the second they believe that you will bring a lawyer into the mix.