Recent MRI

[Nellzer]

So I typed in hyperintensity into Google and it sent me here and from what I'm reading I'm starting to feel a little freaked out because  this is related to my 8 year old daughters MRI she has been having attacks of head pain and numbness and tingling on limbs I very worried for her because I do have MS and her episodes remind me exactly of my own attacks it makes me so sick to think about her living with this for the rest of her life is it possible for an right year old to have MS

[Nellzer]

Oh I see it blocked out my email address well I keep up with thing in here and hopefully that will help with some tips and support :)

[PeninaD]

If you don't have or want FB, I urge you to go to nmss.org, which has a section just for pediatric MS information, including the listing of Pediatric Centers if Excellence around the USA. Some are Stony Brook Lourie Center in Long Island, NY, Dr. Banwell at Children's Hospital of Philadelphia, The Cleveland Clinic, UCSF in San Francisco. I think there are nine around the country, with a FEW pediatric MS specialists scattered. Don't futz around with this, when Ped MS makes itself apparent, it gas already been doing damage to white and gray matter during the child's brain development, and none of the DMT have been tested in children, so you want to go with doctors that have extensive experience using them off label in children.
Also,there are a lot of school issues that regular MS doctors have no experience dealing with.

[PeninaD]

My daughter was finally diagnosed as she was turning 18, she missed half a year of her senior year of HS, but will graduate next Tuesday.
But because pediatricians are mostly still under the old and mistaken idea that kids don't get MS, no one put the pieces together for 3-4 years.  She has black holes in her brain...it was unnecessary.  She was treated as Major Depression with school refusal, and was even psyched for 8 days. Unnecessary. All because no one here knew that kids get MS.
We are in a Rural/Suburban area, but now there is ANOTHER kid entering this HS with pediatric onset MS.
It's not so rare...just misunderstood.  Tw o weeks ago at the MS conference in TX, not one drug company rep knew that kids get MS.  So many doctors stopped at the Pediatric MS Alliance booth because even these established neurologists never heard of Pediatric MS.  I believe that we are going to see more diagnoses now that MDs will learn about it.

[PeninaD]

Please reconsider coming to FB. You would have over 350 parent minds to pick from USA, UK, Latvia, Australia...and support with the odder things such as IEP plans, 504 plans for school, social issues young kids and adolescents with a life altering diagnosis face, and various get togethers and even camps for kids... October,
NMSS will have a Kids Get MS too family get together outside Baltimore (free) but you need to register.

[PeninaD]

http://www.nationalmssociety.org/Resources-Support/Resources-for-Specific-Populations/Pediatric-MS-Support-Network
I believe the woman at NMSS most involved with pediatric services is Kim Koch. Reach out, they can send you a packet of specialized information to get your family started, including a book you can give to her school.

[Nellzer]

I will think about reconsidering I had one and deleted it because of a family member making trouble yes she had a horrible time this year in school she missed 21 days total because of being sick she also has a kidney disorder so that was some of the issue and she was hospitalized for a strep colonization of her body because of frequent strep throat the Drs were at a loss because her tonsils and adenoids are already taken out they ended up putting her on IV antibiotics of rafampin for 5 days anyway she barly passed 3rd grade but I f