Record Keeping - for how long?

[Joiedecour]

For those of you in limbo, how long do you keep records of symptoms? What do you record? Everything or just major events? For example, Monday I had sharp chest pains on left side all day, and back spasms, yesterday I leaned head to left shoulder as I was reading and suddenly felt as if I was going to fall over to left. I KNOW my neuro would dismiss this, but what do YOU do about recording things like this?  How often and how much do you record? I'm trying to forget all this for a while but my body keeps reminding me : ) LOL.

[Joiedecour]

Hey, thank you!! Guess I'll keep on trucking or tracking then. It's a nuisance though, and I've already got gaps in record when discouraged by neuro 's dismissals. Immisceo, I agree with you, but I am not overly concerned about cardio issues because I've already brought this up a couple of times with primary and neuro and neither seemed bothered. Also, it comes and goes, and heat seems to bring it on. But who knows?!! But thanks all again.

[immisceo]

As an aside, I would be less concerned about tracking something like all day left chest pain than I would about immediately seeing a medical professional about them. Given family history and overall statistical reality, chest pains are one of my 'non-negotiables' = get an appointment that day or head to ER. I've never had to do that myself yet, but it's something I've had to think about.

[SarahL2491]

You've gotten some good advice there!  Ditto to what everyone said, my constant record keeping was a virtual "roadmap" for my current neuro!

[kwarendorf]

I kept track of both major and minor things. Major things were things that were frequent/constant visitors like fatigue or double vision. Minor things were those that happened once or twice, things that I couldn't recreate like muscle twinges.

When I was meeting with docs I tried to stick to the major items. If you try and tell them everything you risk losing their attention. Much as we'd like to think they're not, they are only human :-)

When we, my doc and I, were examining my medical history, things that I had assigned the Minor label to turned out to be MS related. Things like urinary hesitancy and minor L'Hermitte's sign.

So I'd keep track of everything until you get this sorted out :-)

Kyle

[HVAC]

Record everything that is significant but when you see a Neurologist keep it to one page with the most important things.

Alex