It's highly suggestive of MS

[ccorina]

Ok, that's what my neuro said today.  Highly suggestive...but not enough on the MRI to prove it and the LP came back negative.  He said he's seen lots of MS without a positive spinal tap.  I also have other episodes clinically but no MRI's to back it up.  He said clinically it's MS.

So he's doing another MRI in 2 to 3 months to have another look.  If he still thinks MS he'll start treating it.  I thought that was a positive.  

He also put me on 2 weeks of presidone.  They didn't do a taper at the hospital.  He thinks it might help things a bit.

He also said that some of my new symptoms like slurring my words and my foot drop might never improve.  I'm using a cane for walking now and I have a parking permit.

Makes me kind of sad.  I knew all this before but didn't have a title.  Now I feel....disabled.  It makes me mad that I need to have someone with me to even go to the mall. I get too tired to walk so I need to be pushed in a wheelchair.  And I cant use the automatic ones at the store because I don't have the arm strength.

This *****

Corina

[sllowe]

I think it's positive too :(

The slurring can improve, if even slightly it will bring your spirits up for sure. I still slur here and there, but not all the time like during my 1st attack, if that's any consolation.

You have a good doc there :) Hang in there.

[Sidesteps]

*Waves hand* Hi Corina!  I'm waiting another six months.

When did your slurring and foot drop start? This last flare? I had a pretty severe flare last Fall and felt pretty sick for a steady year but many of my symptoms improved a lot or went away. I had a lagging leg and now have a mild foot drop still but it's better. My vision has gotten better but the damage is permanent. It's a lot better though so I will hope that for you as well.

Did he at least give you some medication to treat your symptoms? I hope so.

[ccorina]

Jensequitur - I have no idea which drug.  I need to do some research.  We're in Canada so I don't know if that makes a difference or not.

I'm praying the drug will be covered by my husbands plan at work.  He has a new job so it doesn't start until March 1.  Apparently, it's up to his boss whether I'd be accepted under the plan.  But his boss is really nice and just going with an "I don't know anything" attitude.  

Alex - that is so ridiculous.  Some day...I think if they got off their butts and started treating NOW instead of someday, then maybe some wouldn't get as bad as they do.

Corina

[HVAC]

I am so sorry. All my MRIs were positive for two years and I had to wait until my LP was over the top with o-bands. I was told by many neurologists some day you will be diagnosed with MS. I thought then why can't you diagnose me that make no sense? It is very frustrating. I was ready to walk away.

I am sorry about your disability. I feel your sadness and frustration.

Alex

[jensequitur]

Argh... again with the wait and see!  If he thinks it's MS, then he should get you started on some sort of DMD.  You can get the paperwork started on financial aid at least!  Have you thought about which drug you prefer?