Right! Cheeky doesn't apply when it comes to being our own health care advocates :-)
The annoyng thng is that my neuro IS an MS specialist, one of only a few in my city.
I've made an appt with her for the end of January and managed to get an MRI referral for 21 December (at 10 o'clock at night!!!) I was cheeky and asked for it to include brain and spine, and at a hospital with a T3 machine. The last one she only did my brain on a T1.5.
I figure if there's anything to see I may as well give her the best possible chance to find it, right?
I wouldn't worry about wasting her time. It sounds as if continuing to see her is a wast of your time. I don't know how things work in Australia, but I would look for a new neurologist if possible. Your current doc can;t tell you what's causing your problems, but knows it's not MS? Can you find an MS specialist?
Relatively minor stuff can be managed, but that doesn't mean it's not MS. I managed relatively minor stuff for 20 years before learning that all of my minor stuff added up to MS. Suddenly things that seemed entirely unrelated were entirely related!
Kyle
Thanks for the comments. :) The pain is all over the foot, including my toes, so I'm not sure about plantar fasciitis. I'm making an appt with my GP soon and will ask about it.
I had complete bloodwork at the beginning of the diagnostic process, so we've ruled out all the other mimics. When my last neuro wouldn't budge beyond "probable MS" (without a definite dx you can't start any drug treatment here) I said to her "OK, so what other possible causes can there be for what's going on with my feet, and how can we test for them" and she said there was no other possible cause. *shrugs*
The only thing I haven't had is a lumbar puncture, because the neuro didn't think it was warranted. At our last appointment she just said call me if you get a new symptom and we'll schedule another MRI. The thing is, considering the cost and delay in getting an appointment with her, I'm wondering if my relatively minor stuff is enough to be considered a new symptom, or will I be wasting my time and hers over just a heat reaction.
Ouch, Kyle! Hurts to think about it! You're absolutely right, though. My neuropathic pain (or at least that s what we think it must be) is all behind the eyeballs, like on the back surfaces of them, especially the left one. It could, though, happen anywhere a person has nerves, conceivably.
I'm not sure what evidence you new neuro is looking for. Have you had other testing done, like blood work to rule out mimics, lumbar puncture etc.?
Another possibility for your foot issues is neuropathic pain. This is one of my ongoing MS symptoms. There is absolutely nothing wrong with my feet but they can hurt like hell. It is often an intense burning sensation like Athletes foot. alternately they can feel like someone just dropped a bowling ball on them. On really fun days it was both!
There are meds available to treat neuropathic pain. I take a combination of 3600mg gabapentin and 50mg amitriptilyne daily. It took a bit of trial and error to find the right mix, but when we did my feet stopped hurting entirely!
Kyle
To this untrained and undiagnosed brain, it sounds like a.possible relapse with the possibility of other stuff mixed in. The foot thing sounds to me a lot like plantar fasciitis, something with which I suffered for about two years when I worked in retail, on my feet all day on concrete floors.
Oh dear... I just re-read that and I'm so sorry for the long paragraphs. :( Hope you all can muddle through it, if not I'll retype with a few extra breaks.
Footsie