In diagnosis zone...

[keeponbreathing]

First, I had my 2nd MRI yesterday (w/contrast) and I thought of many of you throughout - panicked a few times but knowing you all "exist" out there was a great comfort.  Thanks.
The first MRI was in late September.  I went to the doctor after experiencing weeks of a language problem.  Using the wrong word frequently.  The diagnosis from that first MRI is:  LATE EFF CVD-Dyphasia  (late effect cardio vascular disease with dyspasia I believe).  An area of "abnormal signal" was identified in the right frontal lobe - irregular in shape (oblong) with suggestion of a point of cystic ecephalomalacia within it - nonspecific and possibly gliosis or demyelineation.  A punctuate area of increased signal was also id'd in the periventricular white matter level both on the right and left.  A 5 mm nodule of hyperintense signal was found in subcortical portion of mid left frontal lobe.  Initially my pcp found the report unremarkable and told me to come back in one year - but then she changed her mind and sent me to a neuro (odd behavior).  The neuro did a battery of bloodwork and I will get results on Thursday.  Also will discuss this second MRI I hope.  When I look back over the past several years I can recall: significant and debilitating hip pain (I attributed to exercise), pain when walking down the stairs (full body) I did nothing and waited for it to pass and it did, about 30 days of a very stiff neck (I attributed to a new antidepressant as a side effect), night and day big time sweats (for about 3 months - again I though the AD) then the language issue:  wrong words used frequently - no searching just knowing what I wanted to say and saying something completely unrelated.
So, I just wanted to introduce myself. I dont know if I will get an MS diagnosis or not and I do know this may take some time.  I have an appt at an MS center for a consult the following week.  Do any of you find this brief story remarkable at all?  If you were me would you have any questions for the neuro?  I seem to freeze up a bit when meeting with her.  Thanks, it was nice to just be able to type this in and know that somebody out there who has been through the same, and a whole lot more than me, will read it.  

[keeponbreathing]

Hi again,  I stopped by to pick up the CD with my last scan and the radiologist report.  The diagnosis says:  EPILEPSY NOS - NOT INTRACT....very strange.  As far as I know I've never had a seizure ... what to make of this?  Otherwise there were no enhancements, no change in distribution vs. the last mri and no interval change either.  That's good news.
I had the wrong day for my followup and wont see the neuro until next week so I guess I wait to hear what she has to say.  Just thought I would let you know what has happened.  Thanks.

[keeponbreathing]

Good point and you know what?  Well taken.  Thanks and thanks for the welcome!

[kwarendorf]

"Initially my pcp found the report unremarkable and told me to come back in one year - but then she changed her mind and sent me to a neuro (odd behavior)."

Odd behavior perhaps, but you should be thankful :-) My PCP initially was leaning away from MS. She too rethought and sent me to a neuro, who gave me an 85 % dx and sent me to a specialist. The specialist bumped it up to 100%. All because my PCP changed her mind :-)

Sorry your here, but welcome!

[keeponbreathing]

Hi Tammy,  Thanks for your reply too.  Sorry to meet you "here" and I do appreciate your interest and care.  Thanks for the good luck!  I have my 2nd mtg with neuro in the morning and I suppose time will tell - or maybe not, right?  I have posted a q in the neurology forum and hope I am not bothering anyone here as I am not dx with MS.  I felt like the neuro was maybe leaning in that direction tho.  V concerned about the cystic encephalomalacia - if I have it.  I'm glad you are finally dx'd so you can move on w/treatment.  Thanks for the encouragement, I am a patient person and hope that proves true in this case for me...

[maxthecat9196]

Yep, just hang in there.  It sounds like your neurologist should have a pretty good idea after 2 mri's, sx list, and the the blood work.  Good luck!  Keep us posted.  I went for years attributing relapses to other things too.  It took a long time for both me, and my doctor's to get there- but we finally did.

-Tammy

[keeponbreathing]

Hi Dagun,  Thanks for your reply.  I have made a list of some noteworthy symptoms over the past several years.  My appt on Thurs with neuro should be enlightening but who really knows.  Seems the road is long and I am heartened to find so many wonderful people online who are willing to extend a human hand - like you!  Take care and all the best.

[Dagun]

Hi, I am sorry to hear about your problem. But really good that you are beeing tested. I am not dx, and often it takes a very long time so you would have to be patient like many of us. I do not regonize this problem, but I have twisted words a little but not like this. Maybe there are someone here that knows about this. But I would just say, write down your symptoms and questions for the neuro so you can go over it with him. Good luck in your searcing for answers.
Dagun