Saw neuro today for MRI results

[figuerpa]

Well went to see my neuro today and I have 4 new lesions since my last MRI's last year. I will be hearing from Shared Solutions Friday to set up an appointment to start Copaxone. I should have already started it but somehow his office messed up the paper work. Needless to say he was very upset to hear that I hadn't started it yet.

He was all over the desk people for not sending in the paperwork. He appologized whole heartedly to me and said that I will hear from Shared Solutions by Friday or Monday at the latest.

He did comment on my weight loss and told me that it is wonderful. Said that it is good for me health wise but will also help me with my MS due to not having so much weight to carry.

I go back to see him in 8 weeks to see how I am doing with the Copaxone.

So this was a good/bad visit. Didn't want to see new lesions but glad he is getting things going with the Copaxone.


Paula

[figuerpa]

Julie,

Thanks, I understand your frustration, believe me I have been frustrated by him many times, but I was stuck between a rock and a hard place. Hard to find neuros who take my insurance around here.

I will call the office Monday if I haven't heard from SS by then. I am not playing around anymore. I know where stand now and I don't think my neuro will let this slide again.

Paula

[jujuminx]

This is the reason why neuro's should never say, "let's wait and see what happens". DMD's should be started by anyone dx w MS not when new lesions are spotted on MRI's. And the neuro is the one w ultimate responsibility to make sure his patients are taken care of. Sorry, Paula, this drives me CRAZY!

I knew I had the right neuro when he called to set up my copaxone before I left his office. HE DID IT HIMSELF RIGHT IN FRONT OF ME. That is how important he felt it was for me to start it. I spent a couple more hours in various deptments at the hospital that day and by the time I got home there was a message from SS to set up an appt with me.

I am so happy he finally got off his rear and got this going for you, but so sorry that you had to get new lesions for him to do it.

Julie

[figuerpa]

Oops I missed Norm sorry, he has been up and down as far as caring and thinking I am nuts for a long time. He is more caring now that he has diagnosed me with MS and sees the damage that I have.

Paula

[figuerpa]

Thank you everyone,

Kim - I have had a diagnosis for a while, he just wanted more activity to start a DMD and it should have started late last year but paperowork got screwed up so now I am waiting for shared solutions.

Mary - Yeah he is the only neuro I have seen for the past 3 1/2 years. He now seems to be more concerned since this last set of MRI's showed more activity, I think that is why he was so upset about the paperwork mishap.

Stress has been a huge factor in a lot of what has been going on with me. I am trying to get things to settle down.I am trying to get here more often again. Hopefully life will settle down and I can be back here regularly.


Lulu,

Yeah he has goofed but as for insurance purposes I had no choice but to stay with him. He seems more caring now that more activity has shown. Hoping to start the Copaxone in the next couple of weeks.

Alex,

Thank you! He does seem to care now that he knows it isn't all in my head lol you know how neuros are.

I will keep everyone informed of the Copaxone situation and I will try to get back here on a more regular basis. I did get my placcard renewed for 5 years so that helps with walking.

Paula

[Twinsmom06]

Sounds like your doc it on top of things! I have the same issue with my neuro office. I really love my doctor but I don't trust the office staff to do a darn thing they are asked to do. I'm always checking up on things...I'm sure they hate me...lol.
Forgive me as I am newer to the group, but was this the appointment that gave you the confirmed MS dx? Or did you get one last year and they office messed up and you didnt get you meds?
I am currently awaiting my Febuary 11th appointment to review my follow-up MRI and my AEP and VEP results. I'm very anxious as I believe this will be the determination of dx.
Good luck to you as you start your medication.
Take care,
Kim

[twopack]

Glad to see your doc finally has a fire lit under him Paula.  Is this the same one you've had all along.  I never could figure out why you were given IVSM and symptomatic treatments but never a diagnosis or DMD.

I'm so sorry you are seeing progression in your brain and body.  I bet there isn't much doubt in YOUR mind that stress has been a factor.  Kudos for taking care of yourself and taking charge where you could.

I think I'd be setting up the self-injection instructions BEFORE the Copaxone gets to you.  That way you can open the box when the mainperson cometh and SHOOT to start.

Hope we'll be seeing more of you around here again but I do understand family as priority and limited energy resources.  Thanks for filling us in on what's up with you.

Mary

[Lulu54]

Wow, Paula.  How many times is this guy and his staff going to mess up with your care? This isn't the first time they have fumbled your care.  I sure hope they all get it right this time and your DMT comes through without much more delay,   Copaxone is a great drug, but it can take up to six months to really make a noticeable different with the disease progression.  I hope it works for you, L

[NormanG22]

I would consider it good news, he is showing a caring attitude and is making sure you get set up on Copaxone.

Norm

[HVAC]

Good News. sounds like he cares.

Alex