Aa
Scared of having MS.Early symptomps
Hi my name is Nick and i am new to the forums.
So,long story short,5 months ago i started experiencing an awkward walking,(never had issues with walking or running,even after long distances).
Then,as months were passing,i started feeling weakness to the RIGHT side of my body.Heavy weak arm(as putting the cigarrete in my mouth feels weird,as the smoke is heavy),not impossible,but feels hard to do it.Started losing balance in my right foot(feels like i cant walk with my toes anymore).I never had a fall though,but its just getting worse and worse.If you put me to walk in a straight line,i will do it,but i have to focus,or else automatically if i walk,i keep walking in a right side like i am going rightwards and fall into a wall for example.My moves have became jerky,if you know what i mean,clumsy with lack of coordination,not normal,like moves you see from a drunk guy.Lately i experience shortness of breathe(like my right lung is not getting enough air,like i dont have enough air to pronounce a long sentence and my speech became slurry and my voice heavy.When i swallow anything,even my saliva,feels like everything is going down to the left side of my throat(the unaffected side).I don`t have any difficulties swalloing any kind of food yet,i don`t cough or getting choked as well.
The last days,typing in my keyboard has became difficult as well,my right fingers feel uncomortable when i do and i misstype a lot,as long as i am typing much slower(i was always typing clear and fast on my keyboard).I feel permament diziness and fatigue and my vision is not like it used to be,normal.The last two months i experience a lot of twitching in random parts of my right side of my body(especially when i go to bed and when i wake up and i am still in bed).
I can still do all the moves that my left side of my body does,but i do them 10-20% slower on my right side.
Untill now i went to a neurologist,and he had some tests done to me(you know balance and close eyes and touch your nose things and everything came out clear.Ct scan of my brain and MRI,all clear,but i`ve done a lot of research and homework about MS and saw that MRI or Ct scan can not point that decease easy.I am freaked out,i am only 25 years old and i have dreams of my future,that a deadly desease may destroy everything,as long as affect my loved ones lives
I am very scared that i am in early stages of MS as it`s only 5-6 months now and things are getting worse.
I know you are not goctors or gods guys,but based on your experience,whats your opinion ?
It might be very helpful for you to also get in touch with a Traumatic Brain Injury (TBI) group.
They would gave much more folks with experience in life after a head injury... and whether it is possible that your "concussion" might not have actually been more than a 'simple concussion'. In any case, there are many things that can go on in a brain on a cellular level after some concussions, that can lead to more damage and symptoms. If you have not done so already, obtain disks of all the imaging scans (CT, MRI, PET Scan, even x-rays), so that comparisons can be made if new tests are done now or in the future.
They would gave much more folks with experience in life after a head injury... and whether it is possible that your "concussion" might not have actually been more than a 'simple concussion'. In any case, there are many things that can go on in a brain on a cellular level after some concussions, that can lead to more damage and symptoms. If you have not done so already, obtain disks of all the imaging scans (CT, MRI, PET Scan, even x-rays), so that comparisons can be made if new tests are done now or in the future.
COMMUNITY LEADER
Sorry but I really don't know enough, it's beyond my knowledge to actually speculate, I don't know of any physical conditions, that could significantly 'improve' because of the time of day, i can tell you it's very unlikely to be from MS though.
The only advise I can offer, is to consider if the 'time of day' is not such a factor but that your 'behaviours' at that time of day, are more likely the potential factors eg at midnight you're laying down and your body is fully supported by the mattress = reduction in sx's BUT when you get up, your standing and your spine is unsupported = intense sx's
Cheers.........JJ
The only advise I can offer, is to consider if the 'time of day' is not such a factor but that your 'behaviours' at that time of day, are more likely the potential factors eg at midnight you're laying down and your body is fully supported by the mattress = reduction in sx's BUT when you get up, your standing and your spine is unsupported = intense sx's
Cheers.........JJ
One question,i feel like i am back to myself after midnight,always after midnight hours,all my side effects are reduced by 90%,dunno how to explain that,anyone have any idea?
Plus all of my side effects are mostly intense after i wake up
Plus all of my side effects are mostly intense after i wake up
COMMUNITY LEADER
I wasn't suggesting you were crazy or even depressed........
Only 7 months ago you were knocked unconscious by a blow to your head, head hitting the floor and sustaining additional blows to your head (kicked?).........that is quite understandably, a very traumatic event for anyone and understandably it will take time to physically and (probably longer) to psychologically fully recover from!
Your "just a concussion" is the result of a viscous beating, the visible bruises may be gone, but there is more than the physical signs of trauma, your brain literally bounced around in your skull, so it would not be unexpected for you to still be physically and emotionally heeling after something like that!
You were convinced you had MS from researching your sx's and your fears and anxiety became specifically focused on MS, despite there being no evidence at all consistent.....
What i am going to suggest is that you speak to your family doctor about getting a spinal MRI, to see if there is any structural damage and a physical explanation for what you have experienced since the attack. If there isn't a physical explanation, I would suggest you seriously consider getting your mental health assessed too, because this traumatic event could have 'possibly' effected you psychologically, more than you may be acknowledging and it would be in your best interest to speak to your family doctor about how to recover and move on after what's happened to you.
Cheers...........JJ
Only 7 months ago you were knocked unconscious by a blow to your head, head hitting the floor and sustaining additional blows to your head (kicked?).........that is quite understandably, a very traumatic event for anyone and understandably it will take time to physically and (probably longer) to psychologically fully recover from!
Your "just a concussion" is the result of a viscous beating, the visible bruises may be gone, but there is more than the physical signs of trauma, your brain literally bounced around in your skull, so it would not be unexpected for you to still be physically and emotionally heeling after something like that!
You were convinced you had MS from researching your sx's and your fears and anxiety became specifically focused on MS, despite there being no evidence at all consistent.....
What i am going to suggest is that you speak to your family doctor about getting a spinal MRI, to see if there is any structural damage and a physical explanation for what you have experienced since the attack. If there isn't a physical explanation, I would suggest you seriously consider getting your mental health assessed too, because this traumatic event could have 'possibly' effected you psychologically, more than you may be acknowledging and it would be in your best interest to speak to your family doctor about how to recover and move on after what's happened to you.
Cheers...........JJ
Nick - I have no doubt that something is going on. I just don't think that thing is MS.
Kyle
Kyle
Thank for your kindness suprum,i just think,i feel it,deep inside me,by the messages my body is sending me,
that it;s getting worse and worse,it`s not in my mind,i am not crazy and ive never been depressed in my life before,the oposite,and trust me i`ve been through a lot..
These are not side effects of just a concussion.Yestreday i had burns on my knees for about 2 hourslike my knees were on fire,and thats because i was in a stand-up mode for 1 hour in the hospital in the morning..
Plus the usual,numbness,diziness,fatigue and shortness of breathe(like i dont have enough air to finish my sentence)
This is not a concusion man,come on
that it;s getting worse and worse,it`s not in my mind,i am not crazy and ive never been depressed in my life before,the oposite,and trust me i`ve been through a lot..
These are not side effects of just a concussion.Yestreday i had burns on my knees for about 2 hourslike my knees were on fire,and thats because i was in a stand-up mode for 1 hour in the hospital in the morning..
Plus the usual,numbness,diziness,fatigue and shortness of breathe(like i dont have enough air to finish my sentence)
This is not a concusion man,come on
COMMUNITY LEADER
Due to having changed since the concussion event, and there being no actual evidence that you sustained any permanent physical injuries or brain damage, it would be very reasonable to conclude that you will fully recover back to your normal self.
Take a step back for a moment: If not for your high levels of anxiety and fears, you would more than likely have the perspective to see how unreasonable it would be to be speculating..........that even if it isn't MS, you still could of sustained serious 'permanent' brain injury BUT all the evidence to support the idea, is just invisible on the MRI or invisible to any clinical neurological tests!
Don't make the mistake, of letting your escalating anxiety convince you, that you are in dire straights and getting worse by the day!
Focus on the evidence you actually have, your neurologists reassurances, and challenge your fears by not googling, and redirect your thoughts by focusing on the positives in your life. Try thinking about just how lucky you actually are, to of dodged having to live with a permanent traumatic brain injury, don't allow this event to cripple you......use it to make your life and your self better than you were before!
Cheers...........JJ
Take a step back for a moment: If not for your high levels of anxiety and fears, you would more than likely have the perspective to see how unreasonable it would be to be speculating..........that even if it isn't MS, you still could of sustained serious 'permanent' brain injury BUT all the evidence to support the idea, is just invisible on the MRI or invisible to any clinical neurological tests!
Don't make the mistake, of letting your escalating anxiety convince you, that you are in dire straights and getting worse by the day!
Focus on the evidence you actually have, your neurologists reassurances, and challenge your fears by not googling, and redirect your thoughts by focusing on the positives in your life. Try thinking about just how lucky you actually are, to of dodged having to live with a permanent traumatic brain injury, don't allow this event to cripple you......use it to make your life and your self better than you were before!
Cheers...........JJ
My head had no fractures or breaks,and the brain is clean,no hematomas or something to worry about,at least this is what they say xD
So you think its braing damage that its just not showing in the ct scan and the MRI??
So this is going to stay as it is?Cause i think its getting even worse by the days
So this is going to stay as it is?Cause i think its getting even worse by the days
It would have been helpful to know of your being knocked unconscious and having your head break your fall. It would explain why you do not show any clinical, or radiological, signs of MS.
Kyle
Kyle
Thank you guys for the response,i appreciate it.
My neuro says that theres nothing to worry about and that all these are side effects of an accident i had 7 motnhs ago.
I got into a fight,fell unconsious to the floor with my head and have several blows on my head and behind the ear.Before that,everything was 100% normal.I never had headaches or diziness or fatigue in my life,and everyone was asking me if i was on cocane(this is how active and full of life i was showing).
Now i move like a turtle,and i dont think that all these are side effects of a P-ost-Concussion as my neuro says.Concussions are not acting like that and they definetely do not last more than six months,and even if they do,they do progress and they heal over time.
Btw,no i hadnt my spine or anything except my head checked or scanned.Should i?
My neuro says that theres nothing to worry about and that all these are side effects of an accident i had 7 motnhs ago.
I got into a fight,fell unconsious to the floor with my head and have several blows on my head and behind the ear.Before that,everything was 100% normal.I never had headaches or diziness or fatigue in my life,and everyone was asking me if i was on cocane(this is how active and full of life i was showing).
Now i move like a turtle,and i dont think that all these are side effects of a P-ost-Concussion as my neuro says.Concussions are not acting like that and they definetely do not last more than six months,and even if they do,they do progress and they heal over time.
Btw,no i hadnt my spine or anything except my head checked or scanned.Should i?
Hi Nick - Sorry you are having a tough go of it.
First things first, MS is not a deady disease. Many of us lead perfectly "normal" lives, with normal life expectancy.
There does not seem to be enough evidence to support MS in your case. MRI's don't always show evidence, but your clinical exam was normal too.
What does the neurologist say?
Kyle
First things first, MS is not a deady disease. Many of us lead perfectly "normal" lives, with normal life expectancy.
There does not seem to be enough evidence to support MS in your case. MRI's don't always show evidence, but your clinical exam was normal too.
What does the neurologist say?
Kyle
I read thru you msg and if you mentioned what I am about to ask I apologize. Have the drs looked into any issues with your cervical spine?
COMMUNITY LEADER
Hi and welcome,
Could please brake up your posts like I've done, many pwMS have visual and or cognitive issues, that makes reading large blocks of text difficult - ta
Almost all of the symptoms (sx's) associated with MS, are mostly associated with many other conditions too, though the 'clinical signs' of MS [eg hyper-reflex, clonus, Dysarthria, Optic Neuritis, Nystagmus, Ataxia, Intention tremor etc etc] are more specifically leaning towards there being brain and or spinal cord lesions.
From my understanding, it would be 'very unusual' for this to be MS, because you have a longer list of sx's than typical for an MS first attack. You have no actual clinical abnormalities found by your neurologists, even though you list unilateral coordination, balance, gate, weakness, dizziness etc sx's (ie clear neuro tests). You seem to be rapidly multiplying your sx's, some more typical of late stages of MS and developed within a very short time frame, it also doesn't seem to have the more usual pattern of MS.
Whilst it's true that MRI's for various reasons are not the be all of diagnosing MS, there is a diagnostic criteria (revised Mcdonald criteria) that if met 'and' added with all the other highly suggestive diagnostic evidence (clinical signs, sx pattern, medical history, test results VEP, LP etc etc) with it all added altogether MS goes to the top of the list of likely diagnosis.
What I think you're suggesting, is that MS should still be the more likely dx even though there is no actual diagnostic evidence 'suggestive' of MS but in essence the opposite would more typically be true - without any diagnostic evidence, MS is the less likely causation.
I understand your anxious, but it's in your best interest to not let your self get too freaked out about a condition you may not actually have, try to focus on the evidence and speak to your general doctor about what else it could be......
Cheers...........JJ
btw MS isn't actually classed as a "deadly desease", people dx with MS still actually full fill their life goals and live their dreams....
Could please brake up your posts like I've done, many pwMS have visual and or cognitive issues, that makes reading large blocks of text difficult - ta
Almost all of the symptoms (sx's) associated with MS, are mostly associated with many other conditions too, though the 'clinical signs' of MS [eg hyper-reflex, clonus, Dysarthria, Optic Neuritis, Nystagmus, Ataxia, Intention tremor etc etc] are more specifically leaning towards there being brain and or spinal cord lesions.
From my understanding, it would be 'very unusual' for this to be MS, because you have a longer list of sx's than typical for an MS first attack. You have no actual clinical abnormalities found by your neurologists, even though you list unilateral coordination, balance, gate, weakness, dizziness etc sx's (ie clear neuro tests). You seem to be rapidly multiplying your sx's, some more typical of late stages of MS and developed within a very short time frame, it also doesn't seem to have the more usual pattern of MS.
Whilst it's true that MRI's for various reasons are not the be all of diagnosing MS, there is a diagnostic criteria (revised Mcdonald criteria) that if met 'and' added with all the other highly suggestive diagnostic evidence (clinical signs, sx pattern, medical history, test results VEP, LP etc etc) with it all added altogether MS goes to the top of the list of likely diagnosis.
What I think you're suggesting, is that MS should still be the more likely dx even though there is no actual diagnostic evidence 'suggestive' of MS but in essence the opposite would more typically be true - without any diagnostic evidence, MS is the less likely causation.
I understand your anxious, but it's in your best interest to not let your self get too freaked out about a condition you may not actually have, try to focus on the evidence and speak to your general doctor about what else it could be......
Cheers...........JJ
btw MS isn't actually classed as a "deadly desease", people dx with MS still actually full fill their life goals and live their dreams....
Hi,
Sorry to hear you are not well. it must be very scary with all those symptoms you are describing. Some of them overlap with MS and I have even had a couple of myself although never all at the same time. Has the Neuro said what else he thinks it might be? Does he plan on doing a Lumbar Puncture? Again it is not necessarily a definitive indicator of MS and not all Neuros do it. Has he done an MRI?
Hang in there and hope you feel better soon!
Sorry to hear you are not well. it must be very scary with all those symptoms you are describing. Some of them overlap with MS and I have even had a couple of myself although never all at the same time. Has the Neuro said what else he thinks it might be? Does he plan on doing a Lumbar Puncture? Again it is not necessarily a definitive indicator of MS and not all Neuros do it. Has he done an MRI?
Hang in there and hope you feel better soon!
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
