Seeing my neuro today...

[figuerpa]

I have a neuro appointment today. He wants to discuss how the Copaxone is working for me. I can be happy to tell him that now that I am injecting manually it is going wonderful :) I am so happy it is working. Copaxone is the only DMD I was considering due to the low side effets but with the autoject and the site reactions I was getting I was going to talk to him about switching but for now I am content with Copaxone.

I am going to talk to him about some ongoing symptoms I have been having to see what he thinks about them and see what he wants to do.

Well I will report back after I see him today and give an update.

Paula

[figuerpa]

Zoe, the manual injections are working better for me because the autoject injects too fast and I get bad site reactions, like welts, stinging and discolored skin. The needles are the same for autoject and the  manual injection so there is no difference there. The stinging is to a minimal now and I don't get the welts anymore. I do still get some lumps but nothing like before. With the autoject the worst spots for me were my arms and thighs, never really had a problem with my hips and belly but everyone is different with site reactions, while others have no problem with site reactions. I wish you luck with Copaxone.

Well my neuro appointment went well. He told me he is proud of me for losing weight :) that made me feel real good. I told him that I switched to manual injections and that has helped me a lot. He went over my meds with me and asked if I am having any problems right now.

I told him that the past couple of days my leg is giving me problems but I will ride it out and see what happens. He gave me more meds for my fatigue, I told him I still have some cause there are some days I feel like I don't really need it and he said that was great because I have control over my meds.

I go back to see him in June and he told me if I need anything before then to make sure I call. So all in all it went well, he is so much more caring than he was when I first presented with symptoms. It is amazing how a dx can change attitudes lol.

Well that is all for now,
Paula

[zoefromsussex]

Hi Paula, I hope your appointment goes well and I'm really pleased that the Copaxone is going so well for you. I'm due to start the same dmd soon and was just wondering why the manual injection is so much better? Are the needles very different? Also, I was wondering if you find any of the injection sites more painful in particular?
All the best, Zoe