Hi and welcome to our little MS community, if you haven't looked at them yet, please have a read through our health pages, found just to the right of your screen, i'm sure you'll find many of them very interesting.
The biggest confusion I have is that you have demylinating lesions, sx on par with MS, and your definitely young for brain lesions still in the most common age group for MS, gendar and even sx pattern but still the most you got from the MS specialist is that "it maybe MS at some point but it isnt yet". I suppose in defence of that comment, he could of been refering to not 'yet' having enough diagnostic evidence so he wasn't able to dx (see Mcdonald Criteria- http://onlinelibrary.wiley.com/doi/10.1002/ana.22366/full)
I think there is enough of the 'new' to warrent a return to the MS specialist, your last brain MRI was in 2010 so its probably time for some new tests, visual testing, brain and spinal MRI's. I dont know if you are aware of this but its quite common for pwMS to have a relapse soon after giving birth. Temperature also temperarily affects pwMS too, so its a good idea to make sure you remain cool on hot weather days.
In MS its called a puedo relapse, its not a real one, your sx's return or worsen in the heat but as soon as you cool and rest they return back to your base line. Visual sx's such as you've described could indicate a condition called Optic Neuritis (ON) so getting your sight checked out would be a good idea.
I'm sorry for your situation but i am pleased that you've found your way to us, this is a great place to be for both information and support!
Hugs.....JJ
PS oh pwMS often have visual and comprehension issues, so reading large blocks of text can be difficult, could you please try to break up your future posts and i'm sure you'll get a lot more responses :o)
The MS specialist at the time had reviewed my "newer" MRI and said that it showed no signs of lesions or anything so I think thats why he was confused.
Ok thanks Ill keep that in mind
And old lesions can heal, I think.
I don't know if one of your blood tests was for Lyme Disease or not, but it could certainly cause all your symptoms. It is believed to cause miscarriages, too. I had a lot of the same symptoms and I have a 5 (almost 6) year old, so I know how hard it is to feel so horrible and still try to care for a child (although you have 2, which is harder). This document was really helpful for me in comparing my own illness to the symptoms of Lyme.
http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf
There is a lot of controversy over Lyme Disease, with flawed testing being one of the issues. Too many people test false negative on standard testing, me included, and too many doctors think a negative test excludes Lyme, which it doesn't. There is a specialty lab called IGeneX that finds cases other labs miss. It is worth every penny to get a Western Blot done there.
You might first ask for copies of all your test results, and then look through them and see what was done. Sometimes people show signs of a Lyme infection, but don't rise to the standard of CDC "positive", a criteria that was developed for surveillance (statistical sampling) purposes, not as a diagnostic absolute.
You are welcome to also post on the Lyme Forum to hear others' perspectives.