Aa
Aa
A
A
A
Close
Avatar universal

no one has been able to diagnose me...

I started experiencing bilateral monocular diplopia six weeks ago.  I went to the Er and got a CT.  it was normal.  I went to the ophthalmologist, and he said my eyes are perfect.  I went to a neurologist and got 4 MRIs (with and without contrast of neck and brain) and a VEP.  they were all normal.  but the fact remains that I still can't see.  
basically even if i cover one eye, either eye, I still see double.  not even like a ghost image, but clearly two images overlapping.  I know a VEP is usually a good test for MS but I'm wondering if I might have it still?  I'm worried because last year I was also bedridden for three months with sciatica which I thought was due to my rotated atlas.  My atlas has been getting put back into place lately though so I doubt it's out of place.  But no one can explain my symptoms and don't know what's going on.  Besides, the diplopia is giving me seriously bad headaches.  thoughts?  is it possible to have MS even if the VEP and MRI are normal?
4 Responses
Sort by: Helpful Oldest Newest
Avatar universal
I did see a headache specialist.  she told me it was not migrane related and is the one who ordered all the tests.  when they came back normal she decided to treat me for migranes anyway and the topirimate gave me not only worse headaches, but a long list of terrible side effects.  She has literally told me "I am not looking forward to treating you because I don't know what's wrong".  I am seeing a different neurologist next week... I hope they can figure it out.  

Thanks guys.  
Helpful - 0
2015036 tn?1332997788
I have to agree, it's seems unlikely that this is MS related...  MS doesn't usually cause bilateral symptoms.  It's true that over the course of the disease, eventually both sides of the body will be involved, but not to the same degree.  One side will be quite a bit worse than the other.  

Also, the awful sounding back problems were probably due to injury. That would also make your back more susceptible to injury now...

There are neurologists that are headache specialists.  Atypical migraines can cause visual disturbances.  They can be serious, and should be dealt with.  

I know you're suffering, and I hope you get the help you need.  Please consider seeing a headache specialist.

Tammy
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
Hi and welcome, I would assume if your opthalmologist did not find any visual abnormalities to explain the diplopia, that there is a higher probability that it may not be a visual issue but one of the alternate causes. I don't know much about none visual but I found this very detailed article that may be of help..

http://www.optometry.co.uk/uploads/articles/2c8b0cc4c7b2636385085b3991c9f03e_finlay20001006.pdf

Q: is it possible to have MS even if the VEP and MRI are normal?
A: It is possible but it would be unusual, and it would seem to me that it is less likely to be MS, than more likely to be. (hope that made sense)

Cheers...........JJ  
Helpful - 0
Avatar universal
oh also, I have been getting random numbness and tingles... occasional tremors.  
Helpful - 0
Have an Answer?

You are reading content posted in the Multiple Sclerosis Community

Top Neurology Answerers
987762 tn?1671273328
Australia
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease