Hi di ho I'm joining you officially

[BradfordianSteph]

Hi  Just got my diagnosis of ms two days ago so I'm joining you from limboland.  In hospital being pumped with steroids at the moment which are having a positive impact.  I can see again and my walking has improved no end.  Still feel wobbly like a Weeble a bit like I'm on board ship but I have another 3 days of steroids to go yet so I'm hopeful.  This is my first proper attack.  I was told by my neuro that I had significant damage showing on my mri.  I asked to have a look at it, to be honest although the diagnosis wasn't a shock cos I'd worked it out for myself sometime ago I was shocked by the amount of lesions.

Anyway I'm ok in myself and in my early days so we'll see what the future brings.  I look forward to being apart of your community.  

Will keep you posted.

Love Steph x

[Erin0313]

Steph,

   Welcome! I am glad that you are receiveing treatment and noticing some improvement from the steroids.

  IV steroids can be yucky with side effects but when they help stop a flare they are worth it. I just finished a 3 day course and have to say they made a world of difference.

Take care - see you around the forum.
Hugs,
Erin :)

[jensequitur]

Two words: Welcome!  and Sorry.  But I know it's a relief to finally figure out what's going on.

[tonyad]

   Hello,
  
    Not a whole lot to add as everyone has pretty much said it all but just wanted to let you know that I too am glad that you have answers and are being treated.

    Now comes the part of the realization that you have a Final Dx. While you knew something was going on and the possibilities of it being MS was in the quotion, getting the final clinch is...So-Real!   Be prepared for the Roller coaster of emations that you may have. This is very "normal" of course.

    I hope you have a good support system as this is also key when getiing a dx of a chronic illness.  Again, I am glad that you have answers.

Take Care,
~Tonya

[Guitar_grrrl]

Welcome!  Sorry you have MS, but glad to get to know you.  Fight On!

Nothing like your own bed!  

[Wobbly]

Welcome to the forum and sorry to hear that you have joined us, but that is what we are here for.  take care of yourself and let us know how thing progress and how your feeling

Hugs
wobbly

[BradfordianSteph]

hi everyone  Thanks for your welcome.  I'm a bit early days to know any medication plans.  I'm on these steroid drips till Saturday then I get to go home and I am being referred to a different neurologist.  The one I'm with at the moment is out of my real NHS area and I only got referred cos I was such an emergency and he was the only one with a cancellation appointment available.

I'll be being transferred from here as soon as I leave on Saturday.  I get a new neurologist and an MS nurse so will have more of a clue after that hopefully.  I'm more at a fire-fighting stage than any sort of long term fire-prevention stage  if you don't mind the description.

I think I've been treated very well really I've been impressed with how well its been handled by the NHS system in the UK which is notoriously difficult to navigate.  At the moment I'm concentrating on resting but I can't wait to get home and back to my own mattress!!!!!

Thanks chaps

Love Steph x

[Sparkysarah]

Hi Steph

This forum is amazing and I have been so glad that I found it 6 months ago when I was dx'd. I now feel like a fully fledged member and want to welcome you. I am sorry that you have got this dx but by I sense that it almost feels a relief that at least you know what you are dealing with now.

Our medical system over here in UK is obviously very different from USA so make sure you talk through all your treatement options with your neuro as if DMD's are an option then it can still take some time to go through the screeing I believe.

I am trying to get on an oral drug trial...but that is another story (which can be found in my journal) and I hope to be able to update some more in October when I try again!

Anyhow I hope you start feeling better soon and that the steroids kick in and continue to help. You are going to need to get your rest after this relapse and look after yourself.   You are your best guide to how you are feeling so the only advice I can give you is listen to your body and hang around on this site (but it can become very addictive!) I have learnt far more from the wonderful real people and the great health pages here than in all the literature you can read (although it is helpful to find out the basics).

Get better soon and let us know how you are doing

Love Sarah xxx

.

[RedFlame]

Hi Steph,

Like I have before, it really is a double edge sword--you don't want to be sick, but if you have to be sick you want treatment.  So, I'm sorry you have be here but glad that your wait is over.  

Hoping that the steroids will reduce some of this and you will start a DMD soon.

Red

[Lulu54]

Greetings, Steph.  

I'll add my welcome to this side of the mountain along with the others.  It can be quite the crazy climb to get here - and don't be surprised that at times it doesn't feel any better than being in limboland.

The number of lesions can be frightening - keep in mind it is not the amount of lesions you have, but their location.  We have a health page about that you might want to read to help understand the concept.

Hopefully they will pamper you a bit in the hospital while you finish your steroids - and here's hoping the solumedrol works effectively for you.

be well, Lulu

[sllowe]

Hi Steph,

Welcome aboard! See you on the flip side of this attack!
We can chat about meds and "stuff"!

-Shell

[figuerpa]

Welcome Steph,

I am still one of the limbo landers, but I hope the steroids help you and you get out of the hospital soon.

Glad you finally got your dx so that they know what they are treating. We are on the way to finding my dx hopefully it will be soon, not that I want MS but a diaganosis would be a load off my shoulders.

You take care and keep us informed of how you are doing. You will find wonderful people in this forum. It is kinda like having an extened family here.

Take care
Paula

[Mand125]

Hi Steph and welcome from a fellow UK-er. I'm sorry about the diagnosis but glad you are out of limbo-land.

Have DMDs been discussed with you at all? (Disease Modifying Drugs).

You have certainly come to the right place, this is a great community.

Mand

[jujuminx]

...clarification...1 gram oral solu-medrol a day for 4 days.  Just took my 3rd dose this morning.

Julie

[jujuminx]

Steph-
  Looks like we crossed the mountain about the same time.  I was dx this monday the 23rd. RRMS.  I too am on steroids but oral solu-medrol (1 gram a day).  Jittery and bitter tasting but it is kicking my symptoms so I am very happy.  Almost ALL symptoms completely gone (numbness, tingling, itching, etc).. Yippee!
  
  Hate the dx but love that they now know how to treat what I have.  Feel like I am on my way.  Hope your stay continues to go well and you have a full recovery girl!  You have a great attitude and YES, keep us posted.

  Blessings, Julie

[HVAC]

Welcome I hope you feel better soon.

Alex