Hi and welcome to our little MS community, if you havent done so already, please have a read through our health pages. You'll find them just to the right of your screen, there's a few really good ones on visual issues associated with MS. You can also look at past posts in the "search this community" which is just at the top of your screen.
ON = Optic Neuritis
"What Does Optic Neuritis Feel Like?
Painful: Most people with optic neuritis (about 90%) experience pain when moving their eyes. This pain usually subsides after a couple of days, even if vision is still affected.
Appearing Over a Couple of Days: For most people, the onset is pretty rapid, with the peak vision loss occurring within 24 to 48 hours of onset.
Usually Only in One Eye: Optic neuritis can affect the vision in both eyes simultaneously, but this is extremely rare.
Reduced Vision: This can take different forms and can be described as:
Absence of color
Flashes of light when the eyes are moved, called phosphenes
A “blank spot” in the middle of the eye, called a scotoma
How Common Is Optic Neuritis in MS?
Between 30 to 40 percent of people with MS will have an episode of optic neuritis at some point. Optic neuritis is often the first symptom that leads to a diagnosis of MS. In fact, between 50 and 60 percent of people who have an isolated episode of optic neuritis go on to develop MS.
What Causes Optic Neuritis in MS?
Optic neuritis in MS is caused by a lesion and the related inflammation on the optic nerve."
You need to be aware of what symptoms there are. Realize you will not get every symptom. Each case of MS is different it all depends on when and if a certain nerve gets inflamed or damaged. I have had MS for 47 years and have never had ON. I have never had optic nerve involvement. MS can attack the brain, spinal cord, or the optic nerve.
I hope you are not like I was. I used to look at different people with MS and wonder when this or that thing would happen to me. I have plenty of MS issues but other things have not happened yet. I started when I was two year into diagnosis doing things I always wanted to do. The first was horse back riding. I decided I did not want to have regrets. I was a bicyclist but my balance and double vision made it impossible for me to ride my bike. I sold them and bought used horse back riding gear. Now I ride dressage. A nice lady lets me come out and she trains me on her horses. Other ladies let me ride their horse in lessons as well. I have a whole new set of friends. I tried yoga classes, and pilates, and swimming but I like riding the best. My next bucket list is ziplining. I have to get a bit stronger to do that. I was a dog trainer so I also trained my own service dog and now I am training her replacement when she retires. This led to being on the State board for service dogs. My MS has just taken me in new directions. I used to worry about everything now I try to enjoy what I can do. Some days I can't do as much. Some days I am on crutches or in bed and other days I walk my service dogs 6 miles. It is an unpredictable disease.