Switching MS Meds..Your Experience? Please help

[ErinZoe23]

Hey there guys! I am have been going into some troubling times. Steriods got me out of my last relapse which was caused by trying to work. It helped my knees but after the steriods the remain to stay feeling of hurt and cant bend ect ect i was prescribed a cane and a mri to see if morre lesion are appearing

Before that i had i relapse two weeks before thanksgiving than the knee one started a week into work in december.... So may have just been one big one or i just didnt take my time to get bet better

Any who Avenox i cant take no more..  have been on it for 4 years and every weekend the side effects are unbearable and i don't mentally and emotionally and physically if i can handle it anymore. Maybe one weekend **** out of 2 months i go to sleep and wake up with no side effects. other than that it feels like the first time i took it.. fever extreme ache, chills, ect... ect..  for two days.

So my neuro wants me to get this MRI and come back in  4 weeks before we make decisions ( for she dont want to do anything till im 100 percent out of a relapse or no longer ill, so if we do seee its time to chance the change wont hurt me.....

********Has anyone changed meds before and how was your experience? Did it end up hurting you in the long wrong? Did you go into a relapse? Have you been on avenox to another one and if so which one and how do u feel it has helped you? I have read about tysabri but scared of the infection the brain which is fatal but heard there are now a test for it to see if you have it before hand and than your good to go? And thats only once a month ? Also how do these other MS Meds effect you? Are you sick for two to three days?

Thank you to anyone who answers and your experience one what happened.... will help me alot when i go back in 4 weeks...

although i will not get another mri that is closed !i seemed to gain anxiety and claustrophobia from sooo many of them.. last time i squeezed the alrm ball and threw up ..i cant do it , so i have to find an open mri and hopefully insurance will cover it! the first 3 to 4 were fine but the more  i done the more scared i have become! prob on my 10 b/c of DDD and them doing sections and brain and other ones  ugh that beside the matter tho lol just felt like saying

[ErinZoe23]

Thank you.... I have been researching and find one a bit ways out, but im find with that aslong as i dont have to go in that little whole again! ill go crazy! ill have to call and see if they will accept my insurance.  My neuro said it would find to have a open one it is just the matter of finding one, so hopefully i will be able too

[ErinZoe23]

Thank you Sarah and you are correct she seemed very unwilling and hesitant to make any changes which scares me that maybe it is just me. She didn't even write anything down i was saying or let me talk.

   My old neuro was great.. very theory and knew everything about me every detail.. amazing doctor... but had moved onto another field, this one does not even do the proper test... she did only one the foot to foot one which i fell one the third step, but atleast she caught me! Hopefully the MS Specialist in the office will come in in the 4 weeks apt.

[essdipity]

A big radiology outfit in these parts has a whole bunch of locations, for everything from x-rays and mammograms to MRI. They have been advertising a new 3T open MRI at one of their sites. I don't know more about it than that, or how good it is, though I'd sure find out if it seemed I needed it.

As it is, my MRIs are done on a closed, 3T machine at Hopkins.

Keep researching this till you find a solution, and best of luck.

ess