thats it

[chefaid90]

Ok I am in the process of looking for a new neuro after getting no where with this one. my question is when looking for a new neuro should i tell them about the old one who ran the tests but nothing came back with anything even though my pcp has told him he still believes its MS and that my lesions just arent showing because they arent using the best mri machine they can to find them. have spent almost 4 yrs getting jerked around by this guy who now is leaving the practice and basically told me i now need to lose weight and that i seem better which i dont know who the hell he is kidding i am worse now than a year ago

[PeninaD]

I feel for you. Our insurance gets us some choices in PA, but we had to take our daughter back to NY, mostly because our insurance was from there so best chance of getting an expert in MS.  So every trip is 170
+ miles round trip, major tolls, and NYC has to be one of the most expensive places to park.

[mikeysmom1995]

Have you tried your local chapter of the National MS Society? I just yesterday contacted my local chapter as I too am searching for a new Neuro, they emailed me right away with a list of Neuro s who treat MS in my area. I believe it will save me a lot of time in my search as it lists info for each doctor.
So frustrating, when we have a bad experience with someone we look to for help.
I wish you best of luck in your search.
Regards,barb

[chefaid90]

They dont take my insurance there. Everyone keeps telling me to go to cleveland clinic, I have a medicare/medicaid advantage plan so I am basically stuck to seeing people in my state

[PeninaD]

I forget, had you tried Cleveland or Columbus areas?

[chefaid90]

thanks ladies. I was just so worried after having one second opinion who wouldnt even look at me until he got my test results who then in turn said wow they ran alot of test and that was it. Its getting so hard to find a new one cause everyone that I personally know are all in pittsburgh and go to UPMC which I dont like never had and that is where i have been going and they just shuffle you around. I dont really know people who go to a neurologist to be able to ask for a opinion as to who to go to so I have been trying to find one myself and its either they look good but dont take my insurance or they take my insurance but dont got good reviews. UGHHHHHHHHHHHHHHH I just want some relief from all these symptoms but no one has been willing to treat me until they have a dx.

[SarahL2491]

I have ran into this problem and if you hide, totally hide, the old neuro and the new one finds out (and he will) then he will not trust you.

Be up front.  I have been to a neuro; I am not sure I trust his instincts, I'd like a 2nd opinion from you.  Then I can tell you who he is but I want an unbiased 2nd opinion.

I had this problem years ago and it wasn't a neuro but a regular doctor and I gave him this exact scenario and he did a thorough work up and disagreed with the original doctor but didn't care to know who he was; he had his own findings and he was my doctor for years and years after that.  

As Laura said, more and more documents are electronically linked, especially where insurance companies are involved.  You would be amazed at what you sign when you sign those forms at the doctor's office!

[Lulu54]

Virtually all of our records are eventually linked electronically, and I think it best to just tell the new doc that you are looking for a fresh perspective on your health.  you don't have to go in to what you are thinking about the old neuro or even what you think you might have - let the new neuro start fresh.

This is especially the case since this doctor is leaving the practice.  It is the perfect time to go looking elsewhere.  Good luck. ~Laura