Tecfidera (BG-12) Users: Past and Present

[sllowe]

How exciting is this to add a new med to our DMD user threads!. I always post "past and present' on these  so they stand the test of time when referred to for years to come.

Has anyone started? And, since this is so new..... Anyone waiting on arrival?

Like the Gilenya User thread, you all will have a place to share your beginnings w/this treatment, and also be able to help those who come after you seeking experiences and advice :) You can refer this post to new users so they can add their name and date, etc. like this:

-When dx'd?
-Other treatments prior to Tecfidera (BG-12)?
-How long were you on them?
-How long have you been on Tecfidera?

[mikeysmom1995]

I am waiting for prior approval from my insurance company to start with tecfidera. Biogen, the maker of tecfidera is very good with financial assistance. I am currently on avonex and they have been very supportive, both with financial help, and with any medical questions about the medication or side effects. I am both nervous and excited to start because I have had side effects from the avonex since I started last July.
Barb

[Lulu54]

This is a great conversation - I am sticking with the big gun Tysabir, but I do know some people going to Tecfidera.  I've read the itching for the first few weeks  can be maddening but worth sticking it out.... good luck to everyone making the switch.

[sllowe]

Nervous and excited seems to be the general feeling :)

Jen - is today the day for arrival?

Gypcw - You taking your first doses today?

-shell

[jen673]

Yes it is scheduled to arrive today!!  I've never been so excited to take a medicine enforce. Lol. We will see how excited I am a week from now. Hehe

Jeny

[sllowe]

woop woop - you've got me all hopped up now too! lol

[gypcwmn]

My tecifidera is being delivered tomorrow. I will probably start it on friday