Good Visit to Pain Doctor

[HVAC]

On going saga. Liked the pain Doctor at first. Then had weird phone conversation where he said he had talked to me, when he had not and I had my doubts. I saw his P.A. today. She did that stupid thing of pick the one thing that interfers with your life. I point blank said "that is not a question I can answer since so many things do". She said well what does the most. I said many things do the most. I explained what goes on in my day. She said wow it is complicated. I had to give her a MS 101 lecture and explain I have had this disease 46 years.  She increased the times a day I take Zanflex to 4.

We talked about Botox for me headaches. She suggested I go to my MS Specialist for that. I said he does not do that kinda thing. I explained how my MS Specialists did very little for me. I said they never even explain the exam and what it means. I finally found out today I have a lot of Spinal damage something no one has bothered to tell me. Makes sense since I only have 3 brain lesions and PPMS usually is more about spinal lesions.

All be well.

Alex

[HVAC]

The Zanaflex does not make me sleepy in fact I can't sleep at night after taking it. I guess we are different.

Alex

[DebDJ]

Hi Alex-
HUGS, HUGS, & MORE HUGS TO YOU!!! I am so glad you are getting some help w/your pain, Dear.
Please keep us posted about you and keep looking UP!
Dee

[SarahL2491]

Isn't it always an interesting trip to these people in the white coats....
makes you wish you could be a fly on the wall when they are in med
school to see what they are REALLY telling them and who is sleeping thru class......

Glad you're getting some pain relief anyway!

[Sarahsmom46]

I know you must be relieved that the pain clinic appointment went better than you expected.  I'm relieved for you too.  

They are putting you on zanaflex 4 times a day?  Wow, how do you stay awake, and more importantly, on your feet?  Are you taking it for muscle spasms or spacicity?  

I am taking it only at night because if I take it during the day it wipes me out and takes the spascicity away, something I need to be able to walk. I hope you are not having that affect.

I hope this PA was educated on MS especially PPMS.  Hang in there lady and hope you make to your riding this week.  

Hugs,

Julie

[jensequitur]

Yup, that makes perfect sense.

I have a coworker who had terrible headaches - he was treated with botox, which really helped.  It did make his forehead rather cro-magnon like!

[Sumanadevii]

It sounds like you have found a good one, Hvac.  The phone misunderstanding I guess can happen with a busy doctor.  

The only thing I do know about PPMS is that it isn't relieved by the use of steroids.  I have one brain lesion that they are not even sure if it is MS related but many on my spine and brain stem.  I have Progressive Relapsing MS.  Guess it is the neuro's call to give the type.  None of the progressive types are easy for us.  I feel for you, as I understand you cannot be treated with a DMD that stops the progression.  That would be a hard blow to handle.

I am glad that at least you are receiving relief from your pain.

Sumana