Aa
Aa
A
A
A
Close
Avatar universal

Thank you to all my forum friends


Hi everyone,

I have been gone from the forum for several months due to multiple illness's caused by having MS. Throughout my absence, so many members have contacted me and I wanted to say, "Thank You" and that I slowly getting back in the forum.

I have a rare form of Narcolepsy w/ Cataplexy caused by MS and numerous other serious medical problems caused by the MS. As of today,  I'm cancer free, still taking Tysabri and have been approved for SSDI. I have a limited time each day of being fully conscious because the medication wears off quickly, so if you don't hear from me for a day or two it's because I'm not cognitive enough to function normally.

Thanks again for being such great friends and I hope to continue to meet more people on the forum everyday.

Thanks,

Lori
8 Responses
Sort by: Helpful Oldest Newest
333672 tn?1273792789
Just wanted to say I'm glad there's some good news in there and that you don't have cancer, can keep on with the Tysabri, and got your SSDI.

But, still, it's so hard to have so much taken away from you. To not be able to stay awake and focused. To not be able to accomplish so many things that you dreamed of doing. To not be able to continue in the work that you feel so passionately about.

I don't really know what to say. But I feel confident that you will find a way to be strong, to continue to find meaning in your life, and to continue to be such a generous, compassionate person who is always helping others.

You're in my thoughts.

sho
Helpful - 0
195469 tn?1388322888
You have been missed, girlfriend.  The greatest news, is NO CANCER.  Amen, Amen, Amen.  Thank God for some good. life altering news.  That's great Lori.  I am so happy for you dear.

I know that you still have other health issues, but with cancer out of the way, it will be much easier to deal with the other issues that plague your life.  You are not only a strong person, but a fighter.  That's been proven already, by how you handle your life and the obstacles placed before you.

So SSDI...how fantastic.  One less worry, although none of us will get rich being on SSDI.  I say thats fine, at least it's there for us.  Yes, I know, we worked for our benefits, but what we get out of it over the long haul, is worth it's weight in gold.

How is the Tysabri going?  Which medication "wears off quickly?"  Is that the Tysabri that is doing that to you?  Are you suffering from more cognitive problems/

We am so glad to hear from you girl....you have been missed.  When you can get back in the swing of things, I hope that you will post more often.  You give so much to others, when you have enough of your own to worry about....let us be there for you...please?

We are all rejoicing in the good part of your news.  Still sorry that you are going through so much suffering.  We are here for you babygirl...I hope you know that.  You really are NEVER alone, as long as we are here.  

You've been missed.  Big time.  Let's all gather 'round and give Lori a big Forum hug.

We love you dear heart...always remember that.  We are here for you, night or day.  Even if it's in the virtual world, it helps to know that you have friends who understand and have someone to lean on.

Best Wishes always,
Heather  
Helpful - 0
751951 tn?1406632863
I just wish I knew you, based on the love I see from all these fine folks.  You are obviously a very special person, and I will pray that things continue to work in your favor (Rom. 8:28).
Helpful - 0
559187 tn?1330782856
It is GREAT to hear from you.  It is EXCELLENT that you have successfully navigated the SSDI maze.  Good for you.  Take good care of yourself and we look forward to seeing you on the forum when you can make it.  

Hugs and more hugs,

Julie
Helpful - 0
198419 tn?1360242356
Hi Lori!

Wow! We were just talking about you!

Adding on a Yipee you are cancer free.  I sure pray that the infusions work their magic on you.  Thank God for the SSDI going through.  

Nice to see you, Lori.  You have been missed and thought of very often.

See you back when you can,
(((hugs)))
shell
Helpful - 0
Avatar universal
Hi Lori!

It's so good to here that things are better for you.  Yippee!!!!  Cancer free!!!!!!   Yippee!!!!  I just asked Shelly the other day if she had heard from you.

You have been in my thoughts and prayers, and I'm glad you will be back to the forum.

Take care of yourself.

Hugs,
doni
Helpful - 0
405614 tn?1329144114
Nice to see you back.  Take it easy, and stop in when you can.

SSDI approved and cancer free sound great to me, too!

I'm very sorry about the other medical problems.  I hope that you're getting the best treatment possible, and that you thoroughly enjoy each fully concious moment, and float pleasantly through the less aware times.

Hugs,

Kathy
Helpful - 0
572651 tn?1530999357
Hi Lori,
Its good to hear from you - please don't wear yourself out doing too much....

what great news - cancer free and SSDI approved.  Yeah for you.

Give yourself a big hug from me to you, ok?
Lulu
Helpful - 0
Have an Answer?

You are reading content posted in the Multiple Sclerosis Community

Top Neurology Answerers
987762 tn?1671273328
Australia
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease