Well, I just got a call from my neuro's secretary. They have an appointment for me to have an evoked potentials test sequence on April 14. Somatosensory, brain stem auditory and visual.
When I looked up this stuff just now, on line, I read that they also do a brainstem trigeminal, but, as they didn't mention this when they gave me the appointment, does that mean they don't plan on doing it? They must be, right? Specially since my neuro knows my whole face is now in constant....'something', for want of a better word.
My teeth feel like they all think they need a root canal, my gums feel infected, my lips and tongue feel like they have shingles, my face, around my my mouth worst, lesser around the perimeter, constantly itchy/numb/burning/tingling, jaw feeling like its got something drilling into the hinge, pushing it in, like my jaw is broken, both sides. My left eyelid has been twitching for months now, the right, only occasionally, my left eye did the, 'I'm looking through vaseline', thing, for two weeks just recently.
And, ooohhhhhhhhhhhhh you have no idea of the relief of a cold bottle rubbed onto my jaw. Even my ears are uncomfortable. And the tinnitus.
They HAVE to see something.
When I mentionned that I'd had an mri last saturday and wasn't allowed to have a disk copy 'til the requesting doctor had his report, she said she was sure they would receive it soon. And in the meantime, this is your app't time for your ep, and that my doc would be seeing me after that.
Hmmm
I gather that the somatosensory / visual / brainstem auditory also means brain stem trigeminal? What would be the point otherwise, right? Did I just answer my own question? LOL
Erica