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799695 tn?1257579598

They found a lesion!!

So, I just got the preliminary (over the phone) results with my regular doctor, who told me they did indeed find a lesion on my thoracic spine. Two days ago I had called him for the results, and he told me they were all "normal" and I got off the phone and just cried. Then he calls me back today and said he had only given me the brain mri results, So I am one step closer to finally being taken seriously with this thing. I feel so fortunate to have only waited a year, since I know how long it can take. And I know this isn't a diagnosis yet. I still have to see my neuro next week. But when I got the phone call today telling me they found a lesion, I was stunned, but oddly happy, or relieved. At least now there's a valid excuse for peeing my pants!!! Lol. I just want to thank everyone who is a part of this online support. I'm pretty new here, but I have learned so much and have so much more to learn still.
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799695 tn?1257579598
Well, it certainly isn't a celebration. But after what I have gone through with doctors. When I asked my first GP for a referral to a neuro, she told me I was fixated on a diagnosis of MS and I was going to waste my money paying for a neurologist. Then the first neurologist Literally laughed me out of his office- he was a Parkinson's specialist- after my first MRI came back "normal", yet I was unable to walk, spasming throat muscles, vision problems, stuttering and slurring my speech, numbness, tingling, heat sensitivity, incontinence, cognitive problems.... and the second Neuro said "come back in a year, we'll do another MRI" while I sat in her office in a wheelchair, when only 3 months previously I had been snowboarding twice a week. My sister has this disease, I know what it is. And now I finally feel some validation for my insistence on good health care. Its still scary to think i have a damaged spinal cord, and who knows how much else that's still "invisible" to the MRI. I guess when I had my first attack last year, I just knew, so I have had a lot of time to process it. Though I still kinda feel like I got hit by a truck...
:) Meagan
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338416 tn?1420045702
Well, I'm glad to know that your symptoms are validated, although it's always a bittersweet thing to celebrate the finding of a lesion!
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