Thoughts please?

[Kwazii]

I was diagnosed with RRMS about 1.5 years ago.  I had mild optic neuritis and a numb foot with pain in my calf.  My MRI showed several punctate lesions, only one of which was in an area common for MS.  My neuro was on the fence as to whether the MS lesion was actually a lesion.

Next MRI was 3 months later and the suspicious lesion was not there and there were no new lesions.

My optic neuritis has never gone away, the pain and blurriness comes and goes but its constant and both the blurriness and pain are slowly increasing same with the numbness and pain in my leg.

I now have mild numbness in the tips of my fingers in my left hand for the last 2 months.  

I dont ever suffer from severe fatigue and have never had a relapse as I've heard others describe a relapse.

So I'm wondering if RRMS is the right diagnosis?  Part of me thinks PPMSS and the other part thinks not MS.

Any thoughts would be appreciated!!

[Kwazii]

I suspect PPMS because the symptoms never go away, but they are getting worse.  Some days are better than othefs but the symptoms are always there.

[Kwazii]

I was tested for mimics and everything was negative. No visible lesions on cspine or tspine.  Some disc issues were visible that might explain the foot numbness but I guess i need a back doctor to review to say foresure.  All lesons were teeny weeny!  My neuro is a MS neuro but I am seeking a second opinion.  

My next MRII is February so we'll see what that shows.

[maestro1959]

Why would you think it is Primary Progressive MS?  An increase in symptoms can indicate a flair, confirming Relapsing Remitting MS.

Beth

[aspen2]

Did you have testing for mimics?  Were any of those lesions in your cspine or tspine?  All the lesions were punctuate?

I will say that you would not have had an MS dx from either of my neuros. I have 5 lesions, in ms-y places, and lots of sx -- but the lesions are "too small".  Obviously I'm not a doctor, and I'm not saying you DON'T have it ... but if I were you I would get a second opinion at an ms clinic.