Timeline

[luverofrogs]

I'm trying to get a timeline ready for my new neuro appointment next week.  My problem is that I can't remember what happened when from July 2006-early 2008.  I had a horrible episode that started July 2006 and was in an out of ERs, dr's offices and on so much medication for so many things that I really can't remember when the episode ended, when the next one started, what symptoms appeared when and when I had what tests.  It's all run together.  I was seeing urologist, neuros, several different gps, several cardiologists, psychiartrist, neuropsycholoical exam....various testing and in and out of ERs and hospital stays. My hubby doesn't really remember either, just that I was so very, very ill.  We worried a lot about me dying during that period. So much was going on and it's all run together.  I've been using the neuropsychologist's report to try to piece some of it together.  I'm hoping that my medical records will help my drs fill in the gaps.  How do you all remember things so well?  I've tried keeping a journal, but I didn't remember to keep up with it.   How do you define the end of an episode and the beginning of the next when things linger in between?  

Thank you all so much for everything:o).

[luverofrogs]

Thanks:o).  

Hubby will be staying here with the kids as far as I know.  The neuro's office is just down the street.  He may come and hang out in the lobby, I'm not really sure what he'll want to do.  He usually has gone with me to initial neuro appointments in the past.  

I have most of the history covered.  I've done it like ones on here, basically list form with time headings.  

My new neuro is apparently on maternity leave until my appointment.  I saw my reg dr today and he said that he wants to get her feelings before doing much.  He put on my Singulair followed by Zyrtec for the insane itching on my left side, but even he said that it probably won't help:o(.  

[Wobbly]

I would just write that part down, alot of time you don't remember things from years ago.  

I also learnt that if you have too many items on the list... it's way confusing for the Drs.. so add everything but think short form.... OK...

don't forget what you remember...if you know what i mean..

take care and let us know how it goes
wobbly
undx

[sllowe]

We just don't, ha/ha..

Seriously, I can't always remember either.  That's why I always say jot it down (because that's what I should do).  It's amazing how easy it is to forget a wretched symptom that wreaked havoc on your life for months at a time can just totally disappear in your mind when it finally backs down.

I think it's because it often gets replaced, unless it's a chronic issue.

If you can get ahold of the Drs reports or labs that were run by each one, maybe that will help you ballpark some things.

On second thought, maybe it will be easier for the Dr. to zero in on just a couple of the major things that occurred.  Rather than knowing all the specific details.

Do what you can with your history.  Hopefully the Dr. will ask lots of questions so you don't have to think of it all.

Hubby going w/you?
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