Hi All,
I was reading one of my books on MS yesterday, and had a light bulb moment when reading the discussion of the blood-brain barrier. The author talked about the theory that a trauma can damage the BBB, triggering (not causing) the onset of MS, in someone who is already genetically predisposed to the disease. It was the examples given of what constitutes trauma (“a car accident OR a fall”), that gave me pause. It suddenly occurred to me that I had two bad falls in the years prior to my dx. Recently someone on this board asked about illness or injury prior to dx, and at that time the only thing I recalled was having had mono, years ago. It didn’t occur to me to mention the injury from these falls.
In 2001, I was playing hide-and-seek with my doggies, running carelessly on my slippery ceramic tiles in sock feet. I slipped as a came around a corner and fell, face first, onto the floor. The impact was hard and I literally saw stars. The left side of my face was bruised for days and I had a black eye. It hurt badly, but I didn’t see any need to seek medical attention.
My second fall happened in 2004; again, being careless, I was carrying an overly large load of laundry down the basement stairs, again in sock feet, on stairs that for some reason are painted with a glossy (ie: slippery) paint. My feet went out from under me and I landed smack on my tailbone. This was probably the WORST pain I have ever experienced. I was immediately nauseous, my ears were ringing, and had a massive headache for a couple of hours. I waited several days to see a doctor when I realized the pain in my tailbone wasn’t going away quickly. The ER doc figured I cracked the bone, but said there was no point in doing X-ray since they couldn’t do anything for it anyway aside from painkillers. Several months later I realized my tailbone had still not healed while on a very long flight to Italy; about halfway over the Atlantic I couldn’t bear to stay seated, it was still so uncomfortable.
This may sound a bit odd, but the thought that either or both of these episodes may have contributed to my condition today really affected my emotions yesterday. I was thinking, damn, did I bring this on through my own stupid carelessness; could this possibly have been avoided simply by being a bit more careful and mindful of my surroundings? Fortunately, this feeling didn’t last long, and I quickly came back around to acceptance. I realize I could make myself crazy trying to figure out where this came from, and whether any of this is my fault, but it won’t change what is.
When I was in the process of being dx’ed for MS, and was asked specifically by the neurology resident about any past trauma, it never occurred to me to mention these two incidents. I now wonder if I may have had a slight concussion from one or both of these falls. I think at the time I downplayed my injuries, as I didn’t miss any work and just sort of sucked up the discomfort and pain. Anyway, in your opinion, it is worth bringing this up to my neurologist at this point? It won’t change anything, I already have a dx, but perhaps if there is a link between trauma and MS, it may be meaningful to have this information recorded in my history? Have you been asked this question by your doctors and if so, have they discussed with you a possible link between trauma and disruption of the BBB? If so, I’d be really interested in hearing your understanding of this topic.
Thanks!
db1
PS: btw, the book I mention above is called “Exercises for Multiple Sclerosis: by B. Hamler. It’s a very good resource for those who are interested in fitness.