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923105 tn?1341827649

Um, yes well, I think I have a problem.......

Dear All,

Had my MRI done today on the T 3 MRI.  I had it done w/o contrast, as I am too nervous to take the Gadolinium - yeah I know;/

Anyway, they found the reason for my paralysis, and it's that I have 3 major lesions on my spine.  The brain was the same, but the biggest lesion they found was on my D10 (lower back) the other 2 higher up.   I know what this means, it's not good.  The tech. came in afterwards (first time that had happened) and told me immediately what my problem was.  He was most apologetic.  Not his fault for goodness sake, but it was kind of him nevertheless.

Went back for the full report after an hour ( yep that's they work in France, results same day) and so now I will contact my neuro, but I think he may well be on vacation.  I have an appt. to see him early Sept so I may well wait.  

Anyway just wanted to keep you informed of what happened today, as I have been banging on about it.  I was nervous about where the lesions were, but it was fairly obvious that it had to be my spine.  

Been crying my eyes out all day since the MRI results - guess I have to face the fact that I have had my good times, but maybe there will light at the end of the tunnel:?

Am saying my mantra now, footprints in the sand - I need Him with me right now to carry me.

Crying,

Debs xxxx
8 Responses
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738075 tn?1330575844
Debi,
Je suis desole!  I'm sending you good thoughts.  

Fight hard, girl.  Et n'oublie pas, tu n'est pas seule.  You have a great support system between your family, this family, and your docs.  I'm so grateful for my support system, including this one.  We're all pulling for you, and we're all in this together.

Sending hugs,
Guitar_grrrl
Helpful - 0
611606 tn?1315517767
OH Debi, I am so very sorry, I wish there was some thing more to say to make this news you received go away. That being said, PLEASE Believe you aren't going to through this with out support. I am here, so is the rest of Our Support Group. Even more important is you Faith in God. Our Heavenly will not allow you to go thought this with out Him being by your side. I also rely on " The Foot Prints in the Sands" I happen to believe it with all my Heat and Soul.,The Dr. didn't say this was permanent Did he?  Listen, you are still the same person you were before you legs went to sleep, I have been in a wheel chair for almost 22 years. Depending on your drugs, you can still drive, I did with hand .  controls until I started using Morphine. I want you to cry, scream, do whatever you need to do, But Than I want you to dig down deep and grab hold of your FIGHTING SPIRIT and get good and MAD Not at God, but at the MS. God doesn't give us MS But He will give us the Strength to deal with what ever lies ahead...
So My Sweet New Friend, Know I will always be here for you... I'll PM you later tonight OK but had to respond to your forum post right away..
Know that my Love Hugs and Prayers are with you....Always{{{{~!~}}}
Helpful - 0
572651 tn?1530999357
Well this just stinks, but at least you know the cause of the paralysis.  We have another member here who just returned from an extended vacation in Italy - just a few years back she could not walk and this year she went under her own power.

My point is that this MiSerable disease is impossible to predict and its course is peculiar.  Don't count on this necessarily being forever . ... keep taking your drugs and saying your mantra.

lots of love,
Lulu
Helpful - 0
634733 tn?1316625992
Oh Debs all I can do is add my voice to the others. We are here for you and if we could send all that love, compassion and support through the computer screen you would surely be sustained with the sheer volume of compassion.

I do so hope you have a family and friends who can support you too as you need someone there in person to get you through this.

You should cry and scream and shout and whatever else you need to do to with all the feelings which must be overwhelming. When I had my spine MRI it was on a 1.5T and the pictures were terrible. The neuro just said he didn't need to do another as he knew there would be something there, he just couldn't see it.  But I cannot even imagine how you feel.

Feel free to pm whenever you need to especially as we are practically neighbours.

Sending loads of love and (((((((hugs)))))))))))

Pat
x
Helpful - 0
293157 tn?1285873439
I'm so sorry to hear this... just know that we are hear for you.  I wish we could all just be there in person, but this is better then not having contact with each other.

Hang in there girl...we are praying for you and sending you Hugs..

take it easy
wobbly
dx
Helpful - 0
195469 tn?1388322888
Oh Debs, I wish I was there to hold you, as a mother holds her child...to comfort you.  I am so sorry to hear this news and hate that we can't reach through the screen of these computers, to give you a huge hug.

When is your appointment with the Neuro?  Please keep us updated and make sure you lean on us for support.  You are not alone, even though we communicate through this computer.  We are here for you.

I send all my love and lots of comforting hugs.  Go ahead and cry.  It will help to release all those feelings.  I am so sorry you are going through all of this....I remember well, being in that place myself.

Best Wishes,
Heather
Helpful - 0
667078 tn?1316000935
I am so sorry. I am praying for you.

Alex
Helpful - 0
808815 tn?1254301881
hi sorry to hear about your mri results i too have lesions in my spinal cord you can look up my profile and follow my journey i was diagnosed 24th july with rrms i kind of knew i had it, i have had a really tough few weeks its not a nice time waiting for someone to tell you what your suspect you have,we all have to tryand stay positive and make the most out of each day i am waiting to go on a drug called teriflunomide its just finish i think trials,hopefully this will slow things down. i hope you can come to terms with thing for just now and wait until you see the nuerologist , all the best try and keep your chin up i know its not easy but it helpsx  
Helpful - 0
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