37 years and more bumps in the road

[bjm727]

I've had progressive/remissive MS for 37 years. Been through temporarily losing leg and arm control, blindness, incontinence and loss of bowel control. I've been self cathing for 10 years. 2 years ago I was diagnosed with secondary progressive MS. I opted to have an Ostomy to resolve the bowel problem.. Now I have been told I have low functioning kidneys. Is this another issue related to the MS?

[RedFlame]

I'm so sorry for all of your losses.  You are a true survivor  

Like the others above, I'm wondering if your urinary retention has impacted your kidneys in some way.  

This is a great group of people where you can find support and comraderie!

lois

[Lulu54]

Hi and welcome.  From my limited knowledge- and it is very limited - the MS is probably not going to be a direct problem with your kidneys, but can be the secondary cause of complications.

Our MS can make our bladders malfunction - often through retention, hence the need for self-catherization.  I'm in that group, too. This retention can cause damage to our kidneys,that is why its important to empty our bladders completely. This damage over time can decrease our kidney function.  

Yes, I've just talked this answer in a circle! As I said in the beginning, I am not expert.:-)

Have you asked your doctors about this?  I would like to know the official medical explanation.  

And of course Alex is very right - it could be an entirely different disease than MS.

Welcome to our group here - I hope we'll see you around often.  We can always use experienced voices, such as yours.  

be well,
Lulu

  

[Sparkysarah]

Sorry I cannot answer your question but just wanted to welcome you and say this is a great forum to ask for help and make friends. I am wondering when you were diagnosed with Secondary Progressive MS what led to this dx and did you have a sudden deterioration in your condition. It was brave to go ahaed with the ostomy and to htne be told that you have low functioning kidneys must have been a real setback for you.

Hope some others can give further insight but as Alex says it may just be something that has happened aside from the MS.

With best wishes

Sarah

[tyler911]

Hi

I too have low functioning kidneys, the doc at the time said it was due to the Ms, but now they say I don't have Ms, but Neuro Sarcoidosis, only last week the MS specialist said MS again, so I dont know where i am at right now,

What was your kidney results ?

Tyler

[HVAC]

I am sorry you have had so many issues. I am no Doctor and could not say. I think in rare cases the kidneys can be affected. Just because we have MS does not mean we do not have other illnesses as well so it is hard to say. It could also be a secondary problem caused by the MS.

Alex