Update

[nyangel60]

A new brain MRI showed a new lesion. Radiologist noted it represent dissemination in time of MS. I had met dissemination in space with lesions also in C and T spine. I won't be seen at the MS clinic until next August.

Is it a new lesion or one that was not seen because in the 2 plus years all MRIs were not done using MS protocol until this last one where I asked if that was going to be done. I learnt from this forum about MSP so thank you. After consulting with the Dept head it was done. Another is that when the LP was done by the neurologist who was querying MS no blood was drawn and a test done on it for Obands. So even though spinal fluid was positive for Obands, who knows what the serum would have shown. It is so hard to have any faith in these docs when they do things half and half.

Question: Does everyone who have MS have that phenomenon brought on by heat? I ask because I don't think it affects me. Do others feel pain like they have been beaten all over? I used to be treated for fibromyalgia so I am not sure if that is what is causing the pain now.

Have a great weekend everyone and Happy Thanksgiving to all Canadians on here.

[SarahL2491]

My LP was negative for O bands as well, but lesions were in all 3 sections and separated by time, also had optic neuritis, but took years to get the label I didn't really want!

Welcome!

[zerodegrees]

I hope you can get in sooner.

Also, just wanted to share that I have brain, c-spine, and t-spine lesions. My LP was clean. I was still diagnosed after a 3 week work up. So the LP is just one of the things they look at.

[immisceo]

I happily lay on the beach in Spain this past August, no problem. When I know I'm going to be in a hot environment, I am sensible - drinking lots of water and bringing a walking stick - but it's not a phenomenon I'm ever encountered personally (yes, I'm diagnosed).

With this latest MRI result of yours, I would be considering either putting myself on a cancel list at the neurologist (and becoming *that* person ringing them regularly to see if an appointment is available sooner) or possibly finding a new neurologist. A ten month wait is one of the longer ones I've heard of (although six isn't unusual).

[nyangel60]

Thanks for your response Alex. Even when it is hot I don't notice any difference. I don't usually take hot showers or bath as I don't like when it is hot. I just barely take the chill off the water and I am good.

I have pain from different things and there is a pain management group at the health center I go to that my worker just told me about. I will visit and see what it is like. Thanks again Alex and I do wish you well.

[HVAC]

Heat can cause MS symptoms to be worse. That said I can still take hot baths with Ms over 40 years so each case is different. I have pain for different reasons. I go to a good pain clinic. There are good and bad ones. My doctor got me in the best in town. They help all my pain. Migraines, Muscle Spasms, nerve pain, cancer pain.

Alex