I haven't left but just haven't posted

[houseofallboys]

Hello again to a wonderful group of people
I still read every week to keep updated on everyone's progress and digging hoping I can find answers to my problem. It's been over a year now and I'm still stuck in limbo land. I have fallen back into I guess a flare I have lost my sense of balance and feel dizzy. I seem to have a pattern of this about every 3 months although some of my symptoms have never left these are two that I can't stand. I have since moved and finally have set up a new appointment with another Neuro dr hoping he can put the puzzle pieces together to help me. I'm tired of the wait and see game I want answers ...since I have moved actually I couple of days before I moved I hit another flare not to my surprised I contacted my old Neuro for help but never got a responds,,,go figure,,,

DESPERATE FOR HELP my sister being an ER nurse took me to her work I very kind Dr gave me IV steroids to combat my flare ...The dr was scared to give me so much she was afraid it might kill me ...ha ha I told it's nothing I had a 5 day IV dose about 3 months

I decided it might be trying to break my body but it's not going to break my spirit...

Hoping that the neuro  is going to be good ....I will find out Sept 1st and if not I will keep searching..I’m not giving up I will continue to fight until I find someone who is will help me ..

Thanks for spending the time to read this

Kelly

[maestro1959]

Hi Kelly,

It can be most difficult to keep your chin up when so many things do not make sense.  I think sometimes that I want to just scream, and see if anyone will come scrambling to check it out.

Do not give up, nor should you lose hope.  There is a purpose in all of this, and it is merely taking a while to reveal itself.  I believe we all can be of great use to others because of all the challenges we learn to face as a result of this disease.

I am pulling for you.

Best wishes,
Beth

[Lulu54]

Kelly,

Good luck with this next neuro - don't give up trying to connect with the right doc for you.  I hope you've had a good, fun summer with all those boys.

hugs,
Lu