Web site with info on some MS MIMICS

[santana8]

Hi everyone, I found this web  page that describes presentation, symptoms and testing results on some of the MS mimics. Just thought some of you might be interested in reading it.
This is the address-
http://www.neuroweb.us/chapters/ms%20like%20syndrome/text.htm

santana8

[marez]

Hi.
You can mail me and I would give you my email and send you what I did or when
you come accross something you can see well like me;

go to top of the page select edit (any web page at all)
then select "all" under the edit tab
pick "copy"

then paste into word document by
right clicking in blank word document choose "paste"

select edit
select all
change font to large!!!
and the start hitting the enter button to split it all up.

It is easier then it sounds and then you have it for as long as you want
on your computer.
Happy to help when I can as I don't know much I can
do things like this and the rest of you keep me so well informed.

Thanks to all hope your doing good tonight
Mary

[Deb61]

When I met the neuro I have now, I did not have to stay on his heels--I knew he was competent from day one.  This said a lot because I was tossed around from doctor to doctor from year to year.  By the time I came to him, I was pretty skeptical and had nearly given up on trying to figure out what was wrong with me.  I've seen an endocrinologists, four different rheumatologist, two different opthamologists, a gastrointerologist, two different cardiologists, and finally two different neurologists.  I've also had many different types of diagnosis all these years.  Some of these diagnosis I really do have, which shows the complexity of autoimmunity.  

The neurological symptoms started up about two or three years ago.  The shame is that most of my symptoms are forever with me.  And most of these symptoms have a significant impact on my daily life.  I can no longer get out of bed and out of chairs easily, I have trouble swallowing, I can't see very good, I'm in pain, I can't think well, I've had embarrasing accidents, I can't clean the house for very long, and the list goes on and on and on.  I'm sorry for the rant, but you get the picture . . .

You've got three beautiful kids to finish raising.  You've got to fight for your health--if that means that you've got to stay on their heels to do so, do it!  Any disease that effects the central nervous system is serious.  You must find a diagnosis to get treatment and don't blow it off because your doctor is not knowledgeable enough or is too busy to deal with you!

Deb

[santana8]

Hi,  yes I am wondering about Sjogren's. My neuro hasn't brought sjogren's or anything else up

that I have asked him about. He is pretty much set on ADEM. Although he did say, when I

asked about MS still being a possibility, that it could still end up being MS. He said if I

had a second attack or any new lesions on MRI, which I haven't had in two years, that he

would dx me with MS. But he seems to be leaning toward ADEM. I already had him rule

out another possibility last year. It is called VKH syndrome. I also had some of the symptoms of that. He sent me to a dermatologist for the skin pigmentation and white in

my eyebrow. THis was ruled out by the dermatologist and opthalmologist. My neuro seems to be watching me to see. That's fine for him,but I am not satisfied with waiting

to see if the sky is going to fall on me. I have already asked for bloodwork to rule out

vascular causes, should have this on the 25th of march. Sjogren's is something that I feel

needs to be ruled in or out. I don't know how else to keep him on the ball except for just

keep asking questions.I am not really a watch and see kind of person, especially when I

get worried about something. I realize that I am not his only patient and he dosen't have

time to research every thing that's possible, but I have nothing but time and I am tired of

wondering and being scared. The good thing is he has never been crossed with me for

being persistant, In fact I think he understands. The thing is if I do have MS, I need to know

as soon as possible, so I can start treatment. I don't want to chance becoming more

diabled than I already am. I have three kids to finish raising. Do you think I should leave it

all to the neuro?   I feel that because of my past experiences with other doctors who

obviously did not care or even believe me, that I need to stay right on his heels! And until

he gives me a dx thats all I know to do.



santana8

[Deb61]

I know you're looking at the possibility of sjogren's and came across this response by a doctor:
http://www.medhelp.org/forums/neuro/archive/5404.html

Sjogren's is one of the first things that my neuro considered before giving me an MS diagnosis.  There's blood work, eye tests, lip biopsies that can rule out the disease.  This was something that had to be considered because I've had a positive rheumatological tests (ANA, sed. rate, CRP which were low in titer) from time to time.  My neuro said my MRI ruled that out because of the location of the lesions in the corpus collusum.  

Deb

[santana8]

Hi, sorry about the long paragraph, but I don't know how to send an article to the straight to the forum. I just saw it and I figured some of you would like to read it. Maybe someone can give me some lessons on how to get information that I want to share to the forum and be able to fix it so it is easier for everyone to read. I too have some tracking problems and I experience difficulty keeping place, but it has improved enough for me to get through it now. Since I didn't know how to edit it I just put the address . Maybe one of you who knows how to fix it with spaces could resubmit it for me. I found it to be very informative and it may help some of the others here who are stuck between dx's.

Santana8

[marez]

Hi
I just fixed it as I can't see it either to read will email to you and if anyone else can't see today. I haven't read it lots of information looks good.
thanks for the site San.
Mary

[Heather3418]

I went to check out the website and I could not find who authored this piece.  I was really into reading it, but as usual with me, I find that I had trouble following along cause it was in one big paragraph.  Very hard for someone like me with my MS troubles to keep focused on...but good article.

I think it states alot of what Quix has written up about MS Mimics....

No wonder these Neuro's have such a difficult time diagnosing MS, right?

Heather