Well, I guess I'm out of here!

[Wobbly]

it was so nice to talk to you here on this forum, I just received a letter from a committee I attended a few weeks ago to appeal a Long Term Disability Decision.  it lasted three hours of talking and a physical exam afterwards.

They approved my LTD so I don't have to worry about my job for awhile, I saw three Dr for this appeal, one was a Internist.  In the letter they state that my medical findings MRI, Blood test etc. will probably not show anything in the future testing and they suggest " I URGENTLY SEE A PSYCIATRIC".... so I guess it's is all in my head.

I guess this is good news, I'll miss you guys.  Take care and have a Happy Holiday.
bye
Andrea

[Wobbly]

Good morning, I've just gotten up and haven't even had a cup of coffee, I had to check on my friends.  I'm OK...thanks for helping with yesterday.  

Yes I'm still upset with them and Amy you are correct with the LTD being able to cut my off after two years if they find it a psych thing...I will go see my GP soon, I just saw him last week, but I'll see him before the holidays again.  I have to find out if I can get my GP to refer me or if I have to let the LTD Rehab place send me to their Psych..(I just cn't spell that).  

I have taken antidepressant a couple of years ago, when the symptom started (dizziness and walking)..they didn't make any difference, but I do have alot more pain now..so if they want me to try them again, I will.

Thanks so much for being here guys.  I will keep in touch and don't worry. I'll post you before I doing anything that might be silly...thanks again.

HUGS!!!!!!!

Andrea

[Amyloo]

Two things:  How can doctors project that your future tests "will probably not show anything"????????   Huh?  And second, anti depresants do more than just "relieve depression".  I was already on two different ones when I was diagnosed with fibromyalgia, and my rheumy said he would have rxed the same thing FOR fibromyalgia.  Take them.  You may have to try out a few different combos but take them.  

Oh, third thing:  Some LTD policies have a two year maximum payout on mental health illness, meaning if it is not a "medical" thing that is disabling you but a "psych" thing, they can cut you off after two years.  Check it out, if that is the case get some kind of medical dx in there too, if you can.  God bless you, Amy

[Heather3418]

You are not reposting....please don't frighten me....we have become friends in this short amount of time...I am not about to lose touch with you now.

Please repost and tell me that you are alright and you will keep searching for answers.  Don't let your "fight" be taken away from some idiots that think you ought to see a shrink.  Although, I myself have seen a shrink.

You KNOW when something is wrong with your body.  Listen to it, WHILE you get counseling.  Don't let a doctor make you think you are crazy, just because they don't have the answers.  I see this happen time after time after time...it's enough to MAKE someone crazy.

Been there done that...so I am with you 100% and always will be.

Big (((((HUGS)))))))

Your friend, Heather

[uk2]

Hi

I too have gone on anti-depressants but only because i could not cth the pain and it has helped me alot. If your own GP does not think this is in your head then ask him to refer you to someone who can help, there are so many minor things that can be wrong with your body that fine testing cannot pick up and just because you do not fit in there box they want to right you off, thats so unfair!!  going to a thearpist or psych is fine but they need to be refering to other consultants that might help, stay with us and see how things go you can give great support and receive great support here.

samantha

[Heartshome]

Wow! I just went through this a month ago and all the fine people here got me through it. I did go on antidepressents, just to prove I was willing to try anything. Guess what?  I feel SO MUCH BETTER, HAPPIER, and interested in life. I was depressed...but all my symptoms are still here. I know it's not in my head, even if my MRIs are clear. I don't like going to the doctor (sorry Quix!), I am not a malingerer or a hypochondriac. I don't like to be sick. I want to get on with life. So... I see my doc next week and we'll see what he says now. I know there's nothing else they can do for me. I"ll just have to wait and see if my hands get any worse. They aren't working too well right now. Guess you just have to wait until you're paralyzed before they take you seriously! :)

[Heather3418]

If you leave this forum, I will not only hunt you down with Quix, but when I get ahold of you, I will tie you to a tree and force you to consume chocolate and whipped cream.   Now....are you willing to deal with that kind of torture?  I didn't think so....

So...you are NOT going anywhere, correct?  I thought that's what I just heard you say.  Yup....I knew I heard right.

We love you, Heather

[cjacks]

For crying out loud !!!   What do we have to do for these jerks .  keel over dead before they believe us ..  sorry if that's a little strong but I am so out raged for you and us.
  I haven't had a dr. tell me they thought I was nuts( although I have had a few who were).  I have had this reaction from a couple of friends and family members , which might sting a little more ....   as it turns out I had Hep C..   I had  two years of people saying meditate ( and by the way, meditation  was great for the stress everyone was putting me through )  relax , let it go , get on with your life ... right .. I could barely move ..  Sorry again , now I'm venting .. this is all too familiar .  and I have people in my life now, doing it again.. ( oh god give me strength   :))   )..

  So you see , if everyone on this forum who is told  ' its all in your head '  were to go to the mental health forum half of us would be gone .. I'm very glad you have decided to stick around .. Andrea,  this is such reinforcement for me . We have to be here for each other ,sharing  ..  Its so helpful to know that we are not alone in our struggles.

Sleep tight , dream of angles bright and feel loved and hugged all through the night .

Jo

[mooers777]

Please stay with us. We need you in our lives I'm sure you have helped many others on this forum.
Please give us the chance to brighten you up, Don't let them win!!!

You may not know me but I would like to have the chance to get to know you. I am here to support you in all of what the doctors are putting you through. You know yourself better then all of them do. I to have been through the games of doc's trying to put you into a catagory that is easier for them to understand.

I'm here if you need me, as I am sure everyone else is.

BIG HUGS,
                 Kathy

[mokibear]

There is not much more I can say to you than what has been said already. I just wanted to add my 2 cents worth in here as I do know how you are feeling. You know what you are feeling and your family knows the type of person you are. Even your GP is telling you that there is something wrong. Don't let these idiots take you down.

You belong here as much as the rest of us that are searching for answers. I too am thinking of going to go to a psych just to prove to the nimrod that said I had a psychological problem, that although I am on the nutty side, that is not what is causing my problems. I think too that I need help in finding a way to deal with my frustrations. I know part of the depression I go into from time to time is part of the not knowing. So there is nothing wrong in getting help for that. It will be beneficial to if they agree that there is neurological problem then you can get a letter from them and shove it up the neuro's nose. (sorry, I'm just feeling so angry over this for you)

Don't leave us okay. Vent here and do what you need to and get it off your chest but do not leave. You are an important part of this forum. We will be here for you through this.

((((HUGS))))
Moki

[Wobbly]

I feel so much better, I was crying most of the afternoon.  But now I feel better, they will not keep me down.  I will talk to my Dr and see a Psych and ask to see a Neuropsychologist as well.  

I think my Dr will not be impressed by this letter, I've known him for 20 years and he knows me more then 3 doctors who saw me once.  I'm still waiting for blood results that I had last week, to see if there are anymore changes as well.  

Thanks so much for being here, I will keep in touch with you and let you know how things are.

Take care
Andrea

[Quixotic1]

You are now a charter member of Hypo Gamma Chondria - This is exactly the reason we got the charter for the Greek House.  You can know of the huge number of us who have had to go through this very accusation, me included.  The "it's all in her head" diagnosis is the product of a feeble, lazy, ignorant and egotistic medical mind.  Sheeeesh!!! I was accused of manipulating the medical system just so I could get attention and invasive medical tests!!

You have at least two dozen friends here on this forum who are without a diagnosis, have mostly negative medical tests, and who havefound a supportive home with us.  I understand the depth of anger, humiliation and new feelings of self-doubt that this has created, but I urge you strongly not to let those imbeciles separate you from your friends.  

I do agree that having a thorough psych evaluation behind you can do several things.  For the most part they will see that any anxiety or depression you may have is SECONDARY to the neurologic symptoms you suffer.  They can also help treat that if necessary.  Next, that assessment will quiet the same thoughts in the next doctor's mind before they entertain the idea.  Psychiatrists must have a strong training in neurology and train right beside the neurologists.  Several of us have had psychiatrists be our strongest allies for finding the medical casue of our problems.  Talk to Chris (Momzilla).  Finally, after doing this it will validate you and give you strength and belief.

No one can hear what you just heard and not be devastated by it.  It hurts at our innermost core, but that does not make it true.  Talk to your GP and find a psych who is known to understand chronic neuro illness and the difficulty in disgnosis.  Another thing that can be helpful is neuropsychological testing which is also very good at determining organic depression, from delusional thinking, and from malingering.

Stay with us or we eill hunt you down and drag you back screaming and crying.  Then we will share our ice cream and brownies with you.  And we thank God for the approval of LTD!

(((HUGS)))  Quix (den mother)

[Wobbly]

thanks guys, I don't mind seeing a psych, I saw one years ago and she was quite helpful at the time. At my job, I work with psych and therapists.  It's just seeing/hearing it again, that's all these symptoms are in my mind?  

What will my hubby and family think.... he will think he's married to a person with alot of mental issues.  I don't feel right staying in touch on this forum if I should be on a different forum like MH.  

I will be seeing my G.P. in a week or so, I will let him know what these Dr have come up with and see what he says.  I had ask him quite a few times, if this is all in my head.  My GP said, No it isn't in your head.  The result of the tests show something is not right?  

What a day, I should have stayed in bed.... thanks for listening like always.. you guys are the greatest.  

Andrea

[essdipity]

Hey, Andrea! Seeing a psychiatrist isn't such a bad idea, no matter what's going on with you. With luck you'll find someone who cares about your health and who will listen to all that's been happening. You may need a med of some sort for anxiety, considering what you've been through. This is not AT ALL to say that your symptoms are just in your head. I think that's a load of rubbish. Possibly the psych will conclude that you don't need his or her kind of treatment at all, and will attest to that in a letter of some sort that you can use in the future. At the very least he or she may give you some good advice about what to do next.

I know what it's like to be told 'it's all in your head,' and I also know what it's like to prove them wrong. That happens far more than many in the medical community will admit. My cousin's good friend complained about severe pain, etc. (nothing like MS symptoms) and was told over and over that there was nothing wrong, until she herself believed she was mentailly ill. Ultimately the poor thing died of the cancer that was the true cause. I hesitated to write that because someone reading this might think that they too might have cancer, when that is SO unlikely. But still it's a true story.

So my advice is to see the psych. I hope you get some relief. That would be much better than MS anyway. But don't stop pursuing the cause of your symptoms, and please don't  leave our group. We need you!

ess

[sllowe]

Hi Andrea,

I'm glad you don't have to worry about work for awhile, but please don't let the stigma attached to having to go see a psyc, get the best of you. I'm not saying they are right by any means, just know that you will probably now doubt yourself, and your probably angry w/them.  

It's a sad fact that people make jokes about going to see a "shrink" but a good one can be so beneficial, no matter what you are dealing with, whether it's physical or mental, or a combination of both, which is more often the case with many of us here on this forum.  A physical state can wreak havoc on your mind, and vica versa. . . .

It's okay.  You can stay here with us.  We're a team afterall!  Aaaw heck, I'm sorry I don't have all the right words to say right now, and I'm just blabbering off the top of my head, but I just want you to know that there are people here who care.

Sending you some strength for these next steps,
Be well,
SL

[monotreme]

Andrea,
Please do not let the doctors convince you that you need a psychiatrist.  .  I have been told by doctors at Natl Inst of Health that I had something called Normal Pressure Hydrocephalus, they said I had brain atrophy and then when they decided I didn't have the hydrocephalus they said it was all in my head.  So FORGET THAT NOTE.  You know your symptoms.

I saw Dr. Oz once on TV.  He said that when doctors do not know what is wrong with you they do one of two things.  they refer you to another doctor who may be able to help you, or they say it is all in your head.  So do not give up.  Get some rest and take care of yourself while on LTD.

Best of Luck,
Craig