Aa
What do you think?
Hello I posted on here once before. Here's an update and more information maybe you guys can help me with. My first ever strange symptom was back in October 2011 I believe. Well 2 years ago in October. So this symptom is double vision -binocular. It started out just once in a while and almost seemed like just blurry since the second image was just slightly off the real image. As time went on it was more frequent and less blurry like. Around February it was 24/7 and the second image was a whole image by itself. Doesn't matter which way I look it is still there. Seen my GP around this time and got sent for some bloodwork and a MRI and to see an ophthalmologist. Results from bloodwork showed I have hypothyroid. Went back to GP and noticed goiter so went for thyroid ultrasound and more bloodwork. I have hashimotos. Synthroid brought levels back to normal.
While I waiting to get my MRI done my parents convinced me to go into emerg. So I had a ct scan looked normal. So was referred to a neurologist. Seen the ophthalmologist I was referred to he said from his point of view there is nothing he could help me with. Eye movement was great, 20/20 vision. Had MRI. Neurologist seen it and found 2 UBOs. Or uncatergorized bright spots. He checked my eye movement was great. Reflex tests nothing to worry about. So he sent me to a neuro ophthalmologist.
This doctor said eye movement fine. He gave me a prism sticker for glasses. Sent me for bloodwork. And another ct more in depth of eyes. Was searching for thyroid orbitopathy. But with the bloodwork and scan he said it is not what I have. He told me if my vision gets worse or more symptoms come it is very suggestive to multiple sclereosis.
Sorry for the long story. Not sure how to cut stuff out. If ur still reading your pretty awesome!
Vision was double with my prism on. So vision got somewhat worse. And have had plenty of more symptoms throughout this time period. Was sent for another MRI. GP said it's the exact same as the one a year prior.
My neuro ophthalmologist is sending me to a new neurologist. This neurologist specializes in MS. I have another MRI in feb. And see him in April. He is also doing a lumbar puncture. Which I am really nervous about eek.
Other symptoms. Won't name where or how long for-will make story even longer lol. Each symptoms last 2 days and some had lasted months.
Pins and needles feeling.
Numbness
Sharp stabbing pains
Stiffness so bad I feel like that part of body can break in half.
Burning spots
Muscles weakness. Arm can't even pick up a pen without dropping it.
Pain
Electrical shock type pains
No urgency to urinate (not normal 4 me)
Big crawling feeling
Twitching
Wow. Sorry guys. Any suggestions or if anyone has anything like the double vision. Thanks :)
While I waiting to get my MRI done my parents convinced me to go into emerg. So I had a ct scan looked normal. So was referred to a neurologist. Seen the ophthalmologist I was referred to he said from his point of view there is nothing he could help me with. Eye movement was great, 20/20 vision. Had MRI. Neurologist seen it and found 2 UBOs. Or uncatergorized bright spots. He checked my eye movement was great. Reflex tests nothing to worry about. So he sent me to a neuro ophthalmologist.
This doctor said eye movement fine. He gave me a prism sticker for glasses. Sent me for bloodwork. And another ct more in depth of eyes. Was searching for thyroid orbitopathy. But with the bloodwork and scan he said it is not what I have. He told me if my vision gets worse or more symptoms come it is very suggestive to multiple sclereosis.
Sorry for the long story. Not sure how to cut stuff out. If ur still reading your pretty awesome!
Vision was double with my prism on. So vision got somewhat worse. And have had plenty of more symptoms throughout this time period. Was sent for another MRI. GP said it's the exact same as the one a year prior.
My neuro ophthalmologist is sending me to a new neurologist. This neurologist specializes in MS. I have another MRI in feb. And see him in April. He is also doing a lumbar puncture. Which I am really nervous about eek.
Other symptoms. Won't name where or how long for-will make story even longer lol. Each symptoms last 2 days and some had lasted months.
Pins and needles feeling.
Numbness
Sharp stabbing pains
Stiffness so bad I feel like that part of body can break in half.
Burning spots
Muscles weakness. Arm can't even pick up a pen without dropping it.
Pain
Electrical shock type pains
No urgency to urinate (not normal 4 me)
Big crawling feeling
Twitching
Wow. Sorry guys. Any suggestions or if anyone has anything like the double vision. Thanks :)
Prisms do not work for me because I got double vision before the age of two. If you get it that young your brain compensates by switching from eye to eye so prisms and patches do not work.
They said they were going to do a LP and then did not do it for two years. I had two years to think about it and as you said see videos. I can't even watch Greys Anatomy when they do one. If they had done the LP the week they mentioned it I would have been fine.
Seriously the sedation is the way to go. I remember them transferring me to the table and then waking up in recovery and it was over. Why other people do not ask for it I don't know. I have Cancer and have to have all kinds of nasty things done but I was more afraid of a LP than anything I have ever done.
Alex
They said they were going to do a LP and then did not do it for two years. I had two years to think about it and as you said see videos. I can't even watch Greys Anatomy when they do one. If they had done the LP the week they mentioned it I would have been fine.
Seriously the sedation is the way to go. I remember them transferring me to the table and then waking up in recovery and it was over. Why other people do not ask for it I don't know. I have Cancer and have to have all kinds of nasty things done but I was more afraid of a LP than anything I have ever done.
Alex
I would probably love to be sedated, I watched a video of the procedure in YouTube which might've freaked me out more lol.
Yes I believe in my city there is one or 2 that specialize in MS, I was very lucky to get an appointment in April as they booking all the way into next fall.
Oh wow 48 years :s I can't imagine. Do you use prisms too? Any medicine that you've tried for it?
My prism is amazing I used it only when driving though. Sometimes I laugh when I always see 4 kids instead of just the 2 I have lol.
Thanks for the reply :)
Yes I believe in my city there is one or 2 that specialize in MS, I was very lucky to get an appointment in April as they booking all the way into next fall.
Oh wow 48 years :s I can't imagine. Do you use prisms too? Any medicine that you've tried for it?
My prism is amazing I used it only when driving though. Sometimes I laugh when I always see 4 kids instead of just the 2 I have lol.
Thanks for the reply :)
Thanks for the quick reply :)
We're you diagnosed with MS before they gave you that medicine that helped out your vision?
It's strange that our eyes are perfectly fine but not all at the same time!
I actually don't mind all the appointments, I find anything medical very interesting! And I much rather it be my appointments and not my boys, they had lots when they were smaller. Thanks again!
We're you diagnosed with MS before they gave you that medicine that helped out your vision?
It's strange that our eyes are perfectly fine but not all at the same time!
I actually don't mind all the appointments, I find anything medical very interesting! And I much rather it be my appointments and not my boys, they had lots when they were smaller. Thanks again!
As far as the LP goes you can ask ahead of time to be sedated if you are scared. I do not even remember my LP. I am the only one I know who was sedated but it makes no sense to me why people have to go through them with out sedation.
Going to a MS Specialist sounds like a good plan. I know it may seem like a long way out. I had to wait 11 months for my first appointment with my MS Specialist and I was diagnosed with MS. There are not too many of them.
I hope the prisms help. I have had double vision for 48 years. Since I have known nothing else I just cope with it.
If yours is caused by inflammation it may go away when the inflammation dies down.
Alex
Going to a MS Specialist sounds like a good plan. I know it may seem like a long way out. I had to wait 11 months for my first appointment with my MS Specialist and I was diagnosed with MS. There are not too many of them.
I hope the prisms help. I have had double vision for 48 years. Since I have known nothing else I just cope with it.
If yours is caused by inflammation it may go away when the inflammation dies down.
Alex
Forgot to mention
Forgetfulness.
Difficulty concentrating
Slow processing.
Extreme fatigue.
These might be mostly hashimotos symptoms. Just thought I'd add it tooo
Forgetfulness.
Difficulty concentrating
Slow processing.
Extreme fatigue.
These might be mostly hashimotos symptoms. Just thought I'd add it tooo
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I've had double vision (internuclear opthalmoplegia is the technical term for the version I had) and was given three infusions of methylprednisolone that seemed to work, although it may have resolved on its own.
The only way steroids (that's what methylprednisolone is) would work is if inflammation is at the heart of what's causing issues for your vision. I'd first stopped at a little walk-in optometrist in town and she said 'well, the good news is, you're eyes are healthy'. And they still are. The bad news was the issue was in "HQ". It's the darn inflammation in the central nervous system that can cause optic neuritis or INO. My INO lasted for about two weeks.
It must be exhausting doing all those tests and going to several medical professionals. I know you'll find a lot of kindred spirits on here who've run that gauntlet too. But you're doing it because you want and need some answers, so you've every right to be proud of yourself.