My story could last for days with regard to official testing, symptoms, family history..... but I am exhausted.... Tired of sharing with docs, trying to fix it on my own. I am not going to bore you with the gory details, but just give u simple symptoms, test history and current diagnoses. I need recommendations on a doctor that can get me treatment to improve. Sick of the doctor ping pong.... I feel sure I will forget a few things, but just at my wits end. I know you r not doctors, but I value your opinions from others suffering. Here it goes..stiff muscles years, diagnosed with Fibromyalgia, Primary Immunodeficiency, Chronic infections.... lung damage( 11 Nodules watching closely) Ace levels normal. Eventually tested and confirmed CVID. Worsening pain & stiffness. MRI’s confirm ddd, stenosis and hypertrophy. Dizziness, nausea, tremors, tripping on my on feet continue. Neurologist’s perplexed. Autoimmune tests normal. PT eval says gait and dynamic balance disorder. In Vestibular PT for nausea and dizziness, diagnosis 3pd. C Spine mri indicates demyelination. Brain mri indicates cerebellar Infarct. Spinal MRI indicated greater than 5 Oligoclonal bands in my CSF only...., no Lyme, no infection, no cancer, I am in pain, struggling to walk, dysphagia off and on...tremors worsening.....Now Erythromelalgia diagnosis..... burning red face and extremities when overheated. Autoimmune tests normal except ANA. Blood Coagulation tests abnormal high. I would be interested in similar experiences that resulted in an answer. Any tests I am overlooking? Ideas on how to improve? I have tried just about everything out there, including the latest. I am trying to or have tried. Looking for difficult cases that may have found the answer to improve wellbeing. Not curing, but improving situation. Also any doctor you know in the US that may have knack for puzzle solving neurological ailments?Yes, have spent a small fortune on Functional medicine and it helped get my diet straight and more helpful tidbits. Testing was so expensive and still in pain.Thoughts?