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1043455 tn?1253800083

What were your first signs of ms?

What were the first symptoms you experienced from MS and how long did it take to get a diagnoses?
7 Responses
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771085 tn?1268010265
My first sign was L'Hermitte's.  I had only been experiencing it for about 2 weeks before the numbness got so bad my neuro put me in the hospital.  After only 2 days there, they had done a spinal tap, EMG, and multiple MRIs and diagnosed me based on those results and a look through my medical history of strange random (though MS-related) symptoms I've had for years.  I guess I was quite lucky that my neuro was so on top of things, as it seems like a lot of people here have suffered for years trying to be diagnosed.  
Rhi
Helpful - 0
335728 tn?1331414412
Good question...I presented with Grand Mal Seizures and was diagnosed in 1993 after an MRI and LPand VEP by Dr. W.  It didn't take long for a diagnosis...probably 3 months. It kind of makes me wonder though...Dr. G, (the dr. I am seeing now) is saying that the diagnosis for the trigeminal neuralgia that Dr. W. gave me (Oct. 2006) is not right.  Dr. G. figures that I am experiencing migraines related to MS, not trigeminal neuralgia.

SO...just how accurate is the diagnosis of MS I wonder?  he he

Rena
Helpful - 0
382218 tn?1341181487
Lhermitte's June 2006.  Remitted and no more symptoms till Sept 2007 and had a major attack that hit like a ton of bricks: double vision, numbness over large parts of my body, buzzing/tingling, neuropathic pain incl. 'MS Hug', dizziness, massive fatigue.  Dx'ed with MS 7 or 8 weeks later.
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338416 tn?1420045702
My first symptom was dizziness at the same time every day - 3:30 pm.  I found that I could tell what time it was by when the dizziness came on.  But I went to the doctor because my face started buzzing and tingling.  She prescribed steroids and scheduled me for an MRI, and in that week I started having severe vertigo and cog fog.  It wasn't long after that before I was diagnosed.
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Avatar universal
Excellent question, thanks for asking it.  I'd be interested to know what other people can say about their start too.  Thanks for a good forum, people.  
Helpful - 0
233622 tn?1279334905
The one that screamed MS in my situation was Optic Neuritis but I had other signs before the ON but nothing had come together enough for a dx before the ON.

LA
Helpful - 0
667078 tn?1316000935
On my yearly exam my PCP notice I was weak on my left side, my reflexes were off and my eyes tracked badly. She sent me to a Neurologist. It took 4 neurologist 4 MRIs, VEP, lots of blood work, and a Spinal tap for a diagnosis of MS two years later.

Alex

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