Unexplained symptoms despite numerous tests- could it be MS?

[frustratedandworried22]

I‘ve been having neurological symptoms and no diagnosis has been given yet despite several tests and dr appointments.  MS seems possible and my mother does have it, but it was ruled out by tests for now.  I'm wondering if temporal pain and subsequent head pressure was a first symptom (or symptom at all) for anyone.  I have no prior history of neuro deficits or head pain.  I'm female and in my 30s. My symptoms started like this...8 weeks ago- my right temple was sensitive to the touch for 3 days, but only if touched.  Then very slight head pain began on the right side intermittently, but different from a traditional headache.  5 weeks ago it progressed into a head pressure/burning sensation on top of my head that comes and goes and varies in intensity.  3 weeks ago I started having very slight weakness in my left leg and arm and a couple of days ago even in my face for 2 days on the same side.  My strength has been tested by 3 professionals and it is only slightly decreased on left side (4+ out of 5).  I have had 2 MRIs (1 of brain and 1 of both brain/cervical) that were normal as well as a lumbar puncture.  Blood work that has been done is good except for elevated CRP and sed rate.  Currently I have these symptoms:
Head burning sensation on top of head intermittently (not super painful, just worrisome)
Scalp tenderness
Temporal pain on either side of head intermittently (usually right side)
Left side weakness in leg and arm frequently, but not enough to make me fall or drop things
Skin on legs has a slight burning feeling for a few seconds after being rubbed against something

I've been referred to a neurologist, but my appointment is over a month away. I'm worried about what it could be and can't find one condition that cleanly fits what I’m experiencing.  The MRIs do not show any lesions, making MS unlikely but it’s always in the back of my mind so am wondering if anyone has experienced the temporal pain and head burning/pressure as I’m told they’re not typical MS symptoms. Thank you.

[HVAC]

I know it is hard not having an answer. They sure are trying. The beauty of Neurological disorders is they with time get diagnosed. If it is MS and gets bad the neurologist will act quickly. They just do things in three, six month or year intervals.

Alex

[aspen2]

That would be gooD -- using my son's laptop and the "d" key is finicky ... ;).

[aspen2]

Thanks for updating us, FandW.  It's important at this stage to make sure you keep looking for alternate possibilities, so the rheumatologist seems like a good move.  Continue to be proactive because obviously something is amiss; hopefully you have a goo pcp/gp.

[frustratedandworried22]

Thank you to everyone for your support.  I saw a neurologist last week who said I had a lot of tests done and they could find no neurological basis for what's going on and to "ride it out and see what happens."  That's hard to do when I have a fairly constant head pressure/burning sensation which is scary to me.  I've also been referred to a rheumatologist since my inflammatory markers were somewhat high.  I'm waiting on that appointment.  Hopefully I will get some answers soon.  

[HVAC]

What you describe does not sound like MS to me either. What it is I can't say. I would be interested in what the neurologist says. Something is going on. I would be curious to see what it is.
Alex

[frustratedandworried22]

I will follow up here once I figure out what's going on.

[HVAC]

I am sorry this is so hard. I was wreck for the two years they were looking for MS. It was the hardest time of my life. We well understand both worry and frustration.
Alex

[suspiciouscombo]

I concur with Alex. The worry and frustration is something we understand. Especially the waiting period to discuss with a neurologist. Hang in there and take splice in the knowledge that nothing was discovered on your MRIS. Ox

[kwarendorf]

Hi -

The symptoms you describe are not typical of MS. Coupled with your test results it seems unlikely that MS is the cause of your troubles. I think seeing a neurologist is the right thing to do at this point.

Kyle

[frustratedandworried22]

Ok that's what I was thinking. Thank you for your response.