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572651 tn?1530999357

Where is everyone? Roll call check in time!


It has been a very quiet week around here, and I hope that means everyone is off enjoying life.  It feels like we need to take  roll call to see who's around, so count off!!

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Avatar universal
Hi, Jen.

Thank you, I am hoping I will have Kia longer.....

When Sydney was diagnosed, we lost her in just 5 short months.

But the most important thing my DH and I are watching is her quality of life.
We won't let her suffer.

Sheila
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Avatar universal
Thank you for your kind words about Kia. It really is stressful to watch her go through renal failure.

When I lost Sydney on 2/28/11, to renal failure, the stress was so bad, that my MS progressed.

I'm trying very hard now, to remind myself, that I have been blessed to have Kia for 13 and 1/2 years, and maybe with her homemade renal failure diet, it won't progress too quickly.

I'm very glad you found this group, too.

I joined, long before I was diagnosed. And it was a rough road to my diagnosis.....

I don't post often, my eyes get too blurry looking at the laptop monitor.

Sheila
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Avatar universal
Hi, Kelly.

I'm so sorry that you may have a possible relapse. I hope the medrol dose helps you.

Thank you for your kind words about Kia. I'm sorry that your Husky has cataracts at such a young age. My son and his wife have a beautiful Siberian Husky.

Sheila
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1979418 tn?1432135441

Kat -

Good to hear you are keeping busy and taking the bull by the horns :)   Makes all the difference in the world!

I found that basic yoga was amazing for my balance issues.  My neuro convinced me to get the Wii and use the Wii Fit Plus.  I've pretty  much resolved my balance issues...  they do the age based on balance and coordination type tests.   I'm 43...  when I first started I was in my 60s I think...  now, outside of goobering up a test, I typically am around 32 :)  Think I've been 32 the last 4 or 5 times I did the body test.   So definitely has helped me :)    And some of the games are fun too :)  still a big kid at heart!!!

Have a wonderful day at the beach!!!  

Jen
Helpful - 0
1710955 tn?1309446473
I'm here!  Mostly reading posts, but I'm here. Just sick of talking about me and my problems.

Laura
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1088527 tn?1425313375
well its been a week since diagnosis and its been a busy one had a phone call yesterday with MSlifeline to set up my Rebif it will take about a week or so to get the insurance straightened out but the most I will pay is $50 no matter what the copay is I am so grateful that there is finacial help out there for these expensive meds.

I started PT again this week need to gt strenth back in left leg and work on balance.

I had my urodynamics tests this morning can you say ouch but no results yet but she did say I am retaining urine so we will see what happens next

goig to the beach on sunday to hang with friends other than that keeping cool

take care
Kat
Helpful - 0
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