My wishes for those in limboland

[Salamander2]

While reading posts it occurs to me that alot of people are being strung along by those in the medical community who are perhaps afraid to make the diagnosis of MS.  What a diservice to so many good people who deserve better.  Everyone I know would prefer the diagnosis and begin treatment to being told nothing is wrong.  It's a waste of treatment time that you can never get back.  After my own journey to a diagnosis,  I will say there is hope and no one should give up.

In my mind it is a matter of finding the Neuro you can effectively communicate with and who will be AGRESSIVE.  Four months after a Neuro sent me back to my PCP as neurologically stable (what ever that means),  I have had  additional tests and as a result, had Solu Medrol infusions and will start Tysabri in January.  I feel really good, and hopeful.

I want to slap the cr*p out of my old Neuro and those who continue to tell sick people that nothing is wrong.  I am grateful that my PCP sent me for another opinion,  without encouragement I might not have had the confidence to try another doctor.

My Neuro was willing to make a diagnosis based on my symptoms and
1. Abnormal MRI of brain
2. Abnormal clinical exam (leg spasticity, + Babinski, slow pupil response)
3. Positive VEP
4. Excellent response to steroids

According to some on this site, there are Neuro's who would probably not have given me a diagnosis.  I was lucky to find someone who has a special interest in MS and is willing to begin treatment before a patient has a severe disability.  

My hope is that all can find a Neuro who will listen and fulfill the oath they took when they began practicing, which is do no harm.  That would include doing harm by doing nothing.

This dear people is my Christmas rant.  I hope all have a peaceful holiday and everyone is is my thoughts and prayers.

Blessings,
Sally

[Sunnytoday]

yes, this echo's my thoughts for the day in my poem in my journal, "In Limbo-Land". I'm glad that you've found a neurologist who understands!
Merry christmas!
~Sunnytoday~

[Lulu54]

Sally,
Thanks for that wonderful wish for all. - Lulu

[biowham]

Amen, Sally. Amen. I do think there is some fear there, maybe laziness sometimes, ignorance sometimes, or just not really caring--burnout, maybe? I'm glad you found an aggressive, sensible person who paid attention, didn't focus only on a diagnostic algorithm, and diagnosed a person, not a disorder.

Bio