Who is Diagnosed?

[Quixotic1]

Last winter our wonderful Heather asked this same question and we had a fabulous response.  But, that post got very long and difficult to run through.  We have over a hundred very active members now and I would like to see the results again.  I should have all of this neatly in a notebook or a database somewhere, but, ya know, somehow my organizational skills have gone the way of the dodo bird.

Please, all of you who read this who have ever posted or might someday post:

Please give us

Your date of diagnosis:
Type of MS:
The med, if any you are on:
Time for first symptoms to diagnosis:
How many neuros before diagnosis:

We will all appreciate having the info so we don't have to constantly ask and feel like dufusses.

Thanks, and lets try to keep it bumped up.

Den Mother

[sarahw244]

Dx'd in Dec 2011 (not sure if it counts as a real dx though.)
Type: not sure, but was told probably not RRMS
DMD: haven't discussed them yet
First sx to dx: 3-4 years, but I can think of things going back to my teenage years.  Some things, too, before the 3-4 years ago that ignored.
2 neuros, was dx'd by a physiatrist who consulted with neuro 2 (like I said, I don't even know if this dx counts).

[DaphneJ]

Dx'd 1/2012
Type: RRMS
DMD: Copaxone
Time from first symptoms to diagnosis: less than a year
2 neuros (Both are wonderful, 1st sent me immediately to MS specialist after MRI/Spinal Tap came back)

[kerrtelli]

Diagnosed October 2011
Type:  not sure yet, progressing quickly
Medication:  copaxone
Time:  march 2011
How many neuros:  3

[lilmac91199]

Date of diagnosis: Nov 4, 2011
Type of MS: RRMS  
Medication DMD:  Copaxone
Time from first symptom to diagnosis:  
How many neuros to diagnose
For those last two that is tricky... I was on active duty. I started showing symptoms in Feb 2004. They found that I had cervical ribs and decided they needed to come out. I had an 8 hour surgery in June 2004 for bilateral decompression due to Thoracic Outlet Syndrome. It made me far worse. I was honorably discharged at the end of my service of 10 years in Jan 2006. I continued having problems. As a disabled vet I was being seen through the VA. They ignored all my issues, even though I kept on them. My oldest sister was DX'd with MS in April 2009 and my other sister was DX'd with Lupus in 2006. Symptoms became so bad this past summer went to an outside neuro. He basically started at square 1, ignoring what the military had DX'd me with. After evoke tests, MRI, and LP...less than 2 months later he DX'd me with MS. He believes the military had it wrong all along. He is currently looking through my military medical record.... I am the baby of the three girls and we all 3 have an auto-immune disorder.

[fbz]

date of diagnosis: CIS december 2007, definate MS october 2010
Type of MS: RRMS
Medication: started on Betaferon (think it's called betaseron in the US) february 2008, gilenya (fingolimod) since november 2010
Time for first symptoms to diagnosis: optical nerve inflammation april 2007, LP august 2007, multiple MRI's in different machines postponed the diagnosis since it was hard to compare the images. This gives 3,5 years until MS diagnosis.
How many neuros to diagnos: until definate diagnose 3, only 1 until CIS, in between my first neuro got pregnant and I moved to another town.

[jenphilly]

Date of diagnosis: November 14, 2011
Type of MS:  RRMS
Medication DMD:  just started copaxone
Time from first symptom to diagnosis:  the official diagnosis roller coaster started on June 9th and official diagnosis was 5 months later  
How many neuros to diagnose: well, it more then just neuros!  My true diagnosis was by an infectious disease specialist because my neuro insisted it was CNS lyme.  The ID doc is who ordered the LP when they put in the picc line for the lyme rocephin antibiotics.  The orig neuro confirmed MS, but was a bit of a weenie, so I found a new neuro who also confirmed MS and we reviewed DMDs and I finally opted for copax.  So how many docs total for me - 1 primary, 2 neuros, 1 ID spec, 1 chiro and 1 back and pain doc...  boy that was a crowded room :)

Jen