Woke up with another problem

[sarahw244]

Hello all.  I have another problem (suprise, suprise!)  I woke up in the middle of the night and my right leg from my knee to my foot is numb and really tingly.  It also has burning/searing pain.  My right arm and hand are also very tingly.  Both my foot and my hand feel ice cold as well, but when I touch them, they feel fine.

WTH is going on?  It seems just when one thing gets better, something else pops up.  If I truly do have MS, why does it seem my "relapses" come so close together?  It doesn't seem that I even get any "remittance" from my symptoms when something new occurs.

The doctor did say something about he doesn't think it's RRMS.  Maybe that's why?  I think I should call someone and see if they will treat me with a course of steroids to see if that doesn't knock off some of these symptoms.

Thoughts anyone?
Sarah

[sarahw244]

I've had the tingling before, but not this extreme.  This was very extreme!  My problem is, I feel ill all the time!  I NEVER have any energy and I float through the day feeling like I am in a fog.

It takes me forever just to get going in the morning.  I wake up and sit down in the living room, drink a cup of coffee and start getting my psyched up to begin my day.  This takes anywhere from 1-2 hours.  Then I get in the shower.  If I don't do it this way, I feel like I have a hangover, lol.

I have chronic pain, which probably doesn't help the fatigue or ill feeling.  I know what my chronic symptoms are, but I guess I have probs deciding what is new.  If I've had muscle spasms in my neck, back and right hip are severe, painful muscle spasms in my left hip new?  Or with this tingling; I've had it many times before, but never really in my right arm.  Usually only my right leg.

So confusing when it really doesn't matter, I guess.  I just know that I feel like crap all the time and feel like I am hit by new or worsening symptoms one after another.  I am ready for a break!

[Sidesteps]

Sarah,

We had a storm blow through here so I couldn't really previously elaborate. Have you had these symptoms prevoiusly? I didn't get the impression this was an older symptom.

My baseline includes chronic symptoms - I have better days but they seem to flare with the simplest stress on my body. It's not uncommon for my to have parasthesia at an extreme for a day or two then it subside to not even noticing it just due to not having enough sleep. I also get a milder form of the hug, vision issues, foot drop/leg lag and fatigue. I also get the very strange right hand/right foot ice cold sensation but mine are actually cold to the touch. (I think I've figured out, for me, that it's caused by spasticity. Tight muscles = not a lot of good blood flow.)

I can tell the difference between a flare and an increase in my chronic symptoms by the fatigue and weakness of the rest of my muscles. I feel sick. In each of my flares, the more severe one it wasn't uncommon for me to take very long naps and/or crash on the couch right after work. I felt like I was falling apart. I had shooting pains, vibrations in nearly all parts of my body, couldn't see, had severe eye pain and felt like I couldn't see or balance myself. I was in a full system malfunction. :(

The two milder ones I could barely walk up the stairs without feeling like I was one severe, two milder ones) I imagine the furth in the disease process this will be more difficult for me to judge as it sounds like these increase as your progress.

It takes nearly ALL my energy to function at full speed then a few days into it (because it is hard to tell if I'm actually getting sick or not) I will noticed "Oh, my face is itching and I'm getting stabbing pains." or "Oh, I'm noticing a lot of fluttering in my ears and they ache...and I'm losing my vision. Hmmm~"  It takes me about a week or so to determine that it's a flare while nearly everything that is chronic gets worse. I might be a bit slow or stubborn.

I think your foot drop and lagging is part of your chronic symptoms. It sounds like it could be a reflare of a lesion. Where it seems new is the parasthesia. Do you feel sick?

[sarahw244]

Thanks a lot for all your replies!  It is hard to know what is a relapse and what isn't!  So, I always have probs with my right leg/foot so anything with that is not a relapse?  Who knows!  All I know is that when I get a problem with something it lasts a few weeks and as soon as it's done, something else comes up.

I guess I'll get the hang of it eventually!
Thanks again!
Sarah

[jonlovesbenz]

You mean the cold hands and feet thing are MS related also?

I thought that was my heart issues causing that. It started about a year ago or so. I have had my cardiomyopathy 7 years. It does stay just a few  hours or so.Happens often though

Does it help to wrap them up with extra socks? Does not seem to help mine.

I really feel a lot of comfort from this forum. one doctor seeing my steady decline and helping me to find an answer, and then Nero's telling me I have anxiety makes me tell myself your leg does not hurt or when my legs feel solid and can get them to move right. The arm pain from writing emails the pause in between words, I from NJ and we talk fast so did I until 2 months ago...lol

This makes me know I didn't fall off the wagon.

Have a great day ever one and remember our minds are stronger than anything, the lord only gives us what we can handle.

[Jacksmom516]

I too have the extremely cold right foot but have had that ongoing for quite a while.  

Hopefully this is just a chronic thing acting up like Shell said but call the Dr - It cannot hurt and if then can give you something to relieve the symptoms that would be great.

Hang in there!  
Tracy

[sllowe]

Sarah -

If MS, so many things are chronic, and not related to relapses :( That's how it is for me. For me, these things come and go - could last for weeks, days, and they can be very much different from time-to-time.

I use my baseline, which tells me they are not relapses for me. Just pain-in-the-arsh issues from existing damage.

Hope not an relapse for you :( and it leaves as quick as it came!
-shell

[sarahw244]

Thanks for your reply, Sarah.  I have always had problems with my right leg and foot, but this tingling is way more extreme than it's ever been!  

I should also clarify...my hand does not feel cold when I touch it, but my foot is ICE cold!  Very odd, but it seems everything these days is!

[ohpenny]

Hello

I thought exactly that earlier today I had a gap of six weeks last time between my flair up of usual symptoms they settled again a couple of weeks ago but since then I have developed a new symptom a hot lower part of my leg and also a numb foot along the side. It does seem strange that they flair up but new symptoms just pop up inbetween and last ages.

bye for now, and I hope you get to the bottom of it. I am also playing the waiting game, I have never been so frustrated.

I am Sarah also (not Penny)