Aa
Wonko's Wild Week
Don't you just love alliteration?
The last thread I started was written from down in the dumps, so I thought it appropriate to follow up, though I must admit it was tough to get my head out of clouds long enough in order to do so!
I feel GREAT. Not ok, not good. Awesome. I don't know if it was the prednisone or what, but starting the first day AFTER my last dose of pred, (last Friday) I started to feel better each day. Sat. I flew to CA for a work meeting, and I had to present on Sun. and Mon. Despite this being the most important couple of days for me professionally, the stress did not stop the ongoing improvement, and I was feeling amazing by Monday. I was successful at the meeting, I was able to present enough that ppl. could NOT tell that my productivity had been slashed for most of 2008 by my poorly defined limbo illness, and since I was feeling great, there were no outward clues of a problem, either.
All of this after 5+ months of symptoms, and a near brush with an emotional crash (yeah, things were really started to get to me...) I am feeling like the luckiest person on the planet right now. And awhile ago, I wrote about how much better I felt after a few weeks on neurontin. For the record, that was improvment (and sadly short lived, < 2 weeks), but not nearly as big a difference as I am enjoying now.
So what is next for me? Well, hopefully no more doctors for awhile. I still have some residual weirdness, such as an odd stiffness in my hands and some mild sensory stuff. Heat, tiredness, or both (like after a workout) bring things back, including the vision problems, but only until I cool down or rest. I actually had to RUN through the airport yesterday to make a connecting flight, and while that made my legs tingle and burn like mad, I was ABLE to do it. Less than a freakin' WEEK ago and I would have missed the plane. So while I can tell that "something" happened to me, I seem to be doing really, really well.
I'm also glad that I am still sticking to my newly adapted eating habits. A part of me wondered if I would have the determination if my symptoms got better, but if anything I am excited to keep feeling better and feel commited to keep up with eating well and exercising. I stuck with it even on my trip! There was an exercise room at the hotel and I went everyday. One night, the group dinner was at a pizza/beer place (2 of the "Old" Wonko's favorites!) but I actually stepped aside and ordered a spinach salad that I payed for separately, and an iced tea. Whew! THAT was a close one.
No worries about me going anywhere, I use this site to track my exercise and weight, and plus ya'll have a special place in my ticker. I'm sure I'll "poop" in frequently. I hope others, esp. my Limbo peeps, can soon find RELIEF if not answers.
Take care!
~W
The last thread I started was written from down in the dumps, so I thought it appropriate to follow up, though I must admit it was tough to get my head out of clouds long enough in order to do so!
I feel GREAT. Not ok, not good. Awesome. I don't know if it was the prednisone or what, but starting the first day AFTER my last dose of pred, (last Friday) I started to feel better each day. Sat. I flew to CA for a work meeting, and I had to present on Sun. and Mon. Despite this being the most important couple of days for me professionally, the stress did not stop the ongoing improvement, and I was feeling amazing by Monday. I was successful at the meeting, I was able to present enough that ppl. could NOT tell that my productivity had been slashed for most of 2008 by my poorly defined limbo illness, and since I was feeling great, there were no outward clues of a problem, either.
All of this after 5+ months of symptoms, and a near brush with an emotional crash (yeah, things were really started to get to me...) I am feeling like the luckiest person on the planet right now. And awhile ago, I wrote about how much better I felt after a few weeks on neurontin. For the record, that was improvment (and sadly short lived, < 2 weeks), but not nearly as big a difference as I am enjoying now.
So what is next for me? Well, hopefully no more doctors for awhile. I still have some residual weirdness, such as an odd stiffness in my hands and some mild sensory stuff. Heat, tiredness, or both (like after a workout) bring things back, including the vision problems, but only until I cool down or rest. I actually had to RUN through the airport yesterday to make a connecting flight, and while that made my legs tingle and burn like mad, I was ABLE to do it. Less than a freakin' WEEK ago and I would have missed the plane. So while I can tell that "something" happened to me, I seem to be doing really, really well.
I'm also glad that I am still sticking to my newly adapted eating habits. A part of me wondered if I would have the determination if my symptoms got better, but if anything I am excited to keep feeling better and feel commited to keep up with eating well and exercising. I stuck with it even on my trip! There was an exercise room at the hotel and I went everyday. One night, the group dinner was at a pizza/beer place (2 of the "Old" Wonko's favorites!) but I actually stepped aside and ordered a spinach salad that I payed for separately, and an iced tea. Whew! THAT was a close one.
No worries about me going anywhere, I use this site to track my exercise and weight, and plus ya'll have a special place in my ticker. I'm sure I'll "poop" in frequently. I hope others, esp. my Limbo peeps, can soon find RELIEF if not answers.
Take care!
~W
well, you go girl...sounds like your feeling much better and making alot of changes in your life...that's good to hear. We don't hear that enough around here eh.
keep up the good work with excersising etc.... I wish I could have the (whatever it called)...
keep in touch...
take care
andi
keep up the good work with excersising etc.... I wish I could have the (whatever it called)...
keep in touch...
take care
andi
Yeah, I wasn't too clear on that!
I post a lot, so I sometimes don't repeat details. Just so interested people can tell, I have no diagnosis. I had my first "attack" in Jan, and a 2nd that started in late March and just would not stop.
Recently, I was on prednisone. My dose was 60 mg for 5 days, then 40 mg for 5 days, then 20 mg for five days. I took the last dose last Thurs or Friday. I felt somewhat better, but in the following days is when I REALLY started to feel better. So Sunday was better then Sat, Mon. was better then Sun., etc.
I don't know if there was a delay in the steroids working, or if it was just nature, or what. But I agree that it is FAB.
I too hope it continues. I am taking a 4-day weekend (and not working too hard this morning, either!). I want to take good care of myself and do what I can so that things continue to look up.
I post a lot, so I sometimes don't repeat details. Just so interested people can tell, I have no diagnosis. I had my first "attack" in Jan, and a 2nd that started in late March and just would not stop.
Recently, I was on prednisone. My dose was 60 mg for 5 days, then 40 mg for 5 days, then 20 mg for five days. I took the last dose last Thurs or Friday. I felt somewhat better, but in the following days is when I REALLY started to feel better. So Sunday was better then Sat, Mon. was better then Sun., etc.
I don't know if there was a delay in the steroids working, or if it was just nature, or what. But I agree that it is FAB.
I too hope it continues. I am taking a 4-day weekend (and not working too hard this morning, either!). I want to take good care of myself and do what I can so that things continue to look up.
hI
Wonka
Fantastic really pleased for you long may it continue.
Sorry not sure if I have understood though are you feeling better because you are now taking steroids if so is this the first time you have been on them what mg are you taking,
Or have I lost the thread, what ever has made you feel like this fab.
Wonka
Fantastic really pleased for you long may it continue.
Sorry not sure if I have understood though are you feeling better because you are now taking steroids if so is this the first time you have been on them what mg are you taking,
Or have I lost the thread, what ever has made you feel like this fab.
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